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Thread: 17 years old, diagnosed three months ago

  1. Join Date
    Nov 2009
    Location
    UK, Essex
    Posts
    103

    Hi Katrazena!
    I was 16 (21 now) when I was diagnoses so I truly understand how you feel about school and all that stuff, don't worry thought, you'll ge through it and I can guarantee it will make you a lot stronger!
    As for side effects, I can only speak about Methotrexate, which is what I am on and have been since the start. At first I suffered quite badly from feeling ill (being sick) and tiredness, I think it took me about a year to start to feel better. The best thing is to try and take your dose on something like a Saturday, that way you can spend Sunday resting and hopefully feel better on Monday when its time for school.

    Regarding hairloss, I don't think you have to worry, the doses given are usually not high enough to cause hair loss, however you might notice the quality of your hair change and it might become a bit thinner, but you shouldn't lose your hair.

    Take care!

  2. Join Date
    May 2010
    Location
    Fairview, Texas - north of Dallas
    Posts
    27

    Katarzena,
    I'm sorry you had to join but welcome to the group. My 14 year old son has WG. He was only diagnosed in March so I'm pretty new to everything. So far he is not having any bad side effects to the Cytoxan. He does have the moon face from Prednisone but our doctor assures him that by the time he gets to 10mg it will be mostly gone. He does not like going to high school with a moon face either and is very anxious for it to go away. He has another month before he gets to 10mg. If you ever want to email me directly, my email is theresa@ti.com.

    Theresa

  3. Join Date
    Dec 2009
    Posts
    731

    Welcome to the group Katarzena - I am 29 years old and was diagnosed in Sept 2009. I too have sinus involvement and no kidney involvement . I was initially put on Methotrexate but that did not work for me, no side effects from that at all. I am now on Rituxan - no side effects from that either!

  4. Join Date
    Jan 2010
    Location
    Zagreb,Croatia,EU
    Posts
    14

    Welcome Katarzena (Dobro nam dosla)
    You will find a lot of answers here and on the above added links.
    It was very important for me to find this "place"

    I am also very new at this forum. Diagnosed approx. 1 year ago.
    Hope U will achieve remission very soon..Heep the faith

    if u want u can PM-me.

    lp
    Sebastian

    @ Brooke - I was also on MTX(3x2.5mg/a week for about 4 weeks,and my WG was "acting UP" so i got back to ENDOXAN 3x50mg)

  5. Join Date
    Jun 2008
    Location
    Miami FL
    Posts
    381

    Welcome to our group Katarzena....yes Sangye I have not visited the site in quite some time

  6. Join Date
    Nov 2008
    Location
    Maryland, USA
    Posts
    9,607

    LOL-- oh, you know me SO well, Richard! I miss you! How's my favorite Cuban Weggie?

  7. Join Date
    Aug 2008
    Location
    Mission, BC, Canada
    Posts
    1,707

    Hey hey Richard, we missed your humor. welcome back, big hugs.
    Jolanta

  8. Doug Guest

    A belated welcome back from me, too, Richard! How's your BFF doing? I seem to be holding my own.

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