Big HELLO from CROATIA

[SebastianCRO]

Hi 2 all.

I was diagnosed WG,8 mnths ago.. 1st it was like pneumonia,but when d temp didnt go down and after 3 weeks of testing I had a diagnose and that was WG.. (but lucky 4 me,i had it only on my lungs,and was veery early diagnosed)
After 5 week @ d hospital i was released,received 6 puls "cyclophosphamid" treatments (every 4 weeks) .. and after that a lot of medication.

( now im on -> 1 x 15 mg of DECORTIN - prednizone, 3 x 50 mg ENDOXAN - ciklofos., 2 x 980mg SINERSUL - sulfametoksazol + trimetoprim and 2 x 20mg TARGET PLUS - omeprazol )

Finally i found ure page,and hope to seek and share that little information(and EXP) that we have on this very unknown and rare disease.
Specialy in CRO very little is known.

Soo,again HELLO TO ALL,special TO ALL WG diagnosed people - NEVER GIVE UP
have a nice day


Sebastian

[Sangye]

Hi Sebastian,
Welcome to the group! I think you're our first Croatian member. Your English is just fine--don't worry about that.

I'm glad you got diagnosed quickly. Yes, please post your other meds. That helps us answer questions. I love your message "Never Give Up." Your positive attitude will go a long way in helping you to get healthy again. It also helps other Weggies to hear it!

[SebastianCRO]

thnx

ill post d meds as soon as posible

[elephant]

Welcome Sebastian. Glad you made it here. You did just fine on your English.

[pberggren1]

We are all here for you Sebastian. I'm glad that you were able to find this Forum. It has been a big help for me. You will find it a little overwhelming at first but will soon get used to it.

[katwoman]

Welcome to the group Sebastian!

Its wonderful a wonderful website and its lovely to know that no matter how many waters or how many miles between us, we all we have support right here at our finger tips!!

[pberggren1]

This is truly Providence.

[SebastianCRO]

Hi all. I just wanted to say hallo to all of my WG friends,
I haven't written for a while now.

And bring a little update on me.
(now if that isn't sounding egocentric)

Because I read a lot of ure topics and just have a need to share something with u all,hope u don't mind. (if this is not d place,i would ask the admin to move my topic to "our stories" topic
or just pm me,ill make a new one)

The big change was Last week.

My MD changed my med.
My blood work is getting better and better so I got instead of Endoxan(50 Mg) 3 a day
to
once a week Metotrexat(7.5 Mg) and a day after the metotrex. 5 Mg of Folacin(folic acid).
And decortine was reduced to 10 Mg a day.

I even went to a Immunologist(what I heard and seen,he is the best in our "region" so I'm kind off happy about that)
He said i had a „nice“ journey and holding up very nice.Only that he had a better exp. with the endoxan and he would not go with the metotrexat.But that is his personal opinion and wouldn't rule over my doctors choice.

Whats ure exp. on that choice of medication ?

In general I'm feeling better,even that good that I'm looking for a job(despite recession I'm keeping my chin up to finding one :s ) We have "Detroit" like situations here on every corner.. so its hard. hope on ure side of the world its a little better. (and ure positive about the new Health care reform)

I event went to a little road trip(to celebrate my birthday)
to the coast/Adriatic sea with my girlfriend
(here are some photos so we can all forget us for a bit)




We even went for bicycle's rides,yes, I was more of the bike than one but i ain't giving up that easy.
It was relay relaxing. (although my knees and muscles hurt after)

Now I'm just waiting for my new blood work(and hoping to see some improvements with the new drugs)

My best wishes to all of U out there.
Writing u soon.
Sebastian

Ps..
PM me if u are on facebook,so we can be friends there.

[elephant]

So glad to hear you are doing great. Your medicines are pretty low dose. That is good. Wish you the best and hope you find a job that you love.

[Sangye]

Nice to hear you're doing well, Sebastian. I hope you have even better days to come.