Hi Terri -
you have every right to believe it is true with changes in the weather and changes in your body ( responses of increased aching, stiffness and generalized joint pain...). Working with patients in Physical medicine and seeing so many have these effects/outcomes - I joke that they can tell me if it will rain 2 days before the weatherman can confirm it... Just tell everyone that you have a new summer position as a human barometer....and will take tips...; ) If they were able to improve your pain with some shoe inserts and some ultrasound to your back - that is awesome... some of the simplest actions - seem to make such a difference....Consider aquatic therapy...warm if your body can take the heat...
I had not seen the threads from our croatia friend... I hope that everything improves and that you are able to pursue your love affair with the sports teams and dealing with the american way of life... Sometimes twisted, other times very blessed... I have had more interest in seeing how the other half lives ( Canada with socialized medicine, etc...) and comparatively dealing with insurance issues and plans here in the states... I can truly say that it has been a joy to "see" other people on the web who have this engagingly rare illness - although I get tired of being told to buy lottery tickets...secondary to the rarity of the disease.. yeah right!..
I have met people who have been newly Dx with Wegener's in hospitals to share that life is approachable, enjoyable and no, you will probably not die immediately... no matter what others/web sites say... I have appreciated the team effort to help people dealing ( reeling) with this Dx... and get them the appropriate care sooner... After 14 years since diagnosis... It has been interesting... As my brother states "Any day above ground is a GOOD day"... Thanks for the opportunity to read, share and add some insights...


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