Vikings fan diagnosed in June 2009

[coffeelover]

Oh by the way....I get the Flu shot every year and have had the life time Pnumonia shot. I will get the H1N1 shot when it becomes available
LIsa

[Purple Bleeder]

Thanks to everyone for their quick replies and advice! Sounds like I need the flu, H1N1, and Pneumonia shots. My wife has been needling (pun intended) me to get these and will be happy to hear it's ok.

So far, I've only had sinus problems, eye pain, and fatigue. I'm hoping to get the disease in remission soon. I'll keep everyone posted and am glad to have somewhere to go to for these answers. I wish everyone else the best in battling their Wegener's. I'm happy to see some Minnesota people on the site and look forward to maybe meeting some day!

[RCOSSIO]

would it be wrong to say "Go Packers"

[Purple Bleeder]

Ouch! Richard, I thought you were a Dophins fan? That hurts worse than the WG pain I have!

[RCOSSIO]

UR RIGHT...IT HAS NOT BEEN FUN BEING A FIN FAN FOR THE LAST 18 YEARS (THAT'S HOW LONG i HAVE BEEN A SEASON TICKET HOLDER). I GUESS SAYING "GO PACKS" HELPS ME MITIGATE MY PAIN...AND WE HAVE NO QB NOW....OHHHHH IT WILL BE A LOOOOONNNNGGGGG SEASON!

[Tim Roberts]

More comments from yet another Minnesota Wegener's patient. Strange that there are so many of us right here in Minnesota and it seems a bit odd to me. Anyone else think this is strange?

In any event, I am so thankful I found this opportunity to meet all of you and experience all of your expertise and wisdom with this disease. I was diagnosed at the end of July this year after feeling sick for nearly three months. I also have to consider myself fortunate as I had only lung involvement in my right lung and no kidney or other issues. My treatment has gone well and I am down to 20 mg of prednisone daily and weekly methotrexate treatments.

All of this is still so new to me your input, suppport and thoughts are very valuable not only to teach me more but to realize that there are a number of us out there with this disease. Before this opportunity to talk to all of you, I have never had contact with any other Wegener's folks. Thanks for all your help.

[Sangye]

It's nice to meet you, Tim. What's going on in Minnesota? I do hope you go to Mayo for treatment. I wonder what they'd have to say about so many of you from one state.

[Tim Roberts]

Thanks Sangye for your message. Not sure what is happening in Minnesota but there sure seems to be alot of lately.

I am actually being treated by a rheumatologist here in St. Cloud and she currently has four Wegener's patients. I am fortuante, however, to have a brother in law who is a physician at the Vascular Institute in South Carolina and he sees us Wegener's folks all the time. He is continually viewing my progress and treatment so I feel very fortunate. With that resource, maybe I can be of some assistance to other folks as they ask questions. It seems as though this is such a strange disease as we all seem to have different symptoms and issues.

Thanks for the message and have a wonderful weekend.

[Sangye]

That's a great resource for you. Otherwise, with a rheumy who sees only 4 Weggies, you'd be in deep trouble. At first it seems like a lot--considering how rare Wegs is-- but once you work with the Wegs specialists, you see it's completely inadequate experience. As your BIL knows, you have to see Wegs all the time to really understand it.

[Doug]

Hi, Tim- I'd commented recently myself about the unusual frequency of weggies from Minnesota lately. It's worth bringing up. I think you are fifth ot sixth now from that state. It seems like most of the Minnesotans on the forum now are from the southern end of the state, too.