Another possible sufferer

[Shooppoop]

Hi all,

Long time no see, but finally my computer has let me on to here without telling me it doesn't exsist.

Well a couple of weeks ago I spent 3 days in hospital as I was having pain associated with my gall bladder/liver area and I was still experiancing tachycardia. They re-did all my bloods and did a ultra sound on my abdomen, more chest x-rays and more ECG's and luckly they found no problems and my CRP and c-ANAC have dropped on their own. They think that I might be having muscular problems associated with the vasculitis as this all started when I twisted to quickly and now if I sneeze or move to quickly I can pull a muscle.

They have now put me on monthly blood and urine checks as well as quartly Rheumy appointments to keep this in check.

However I am still waiting on the final diagnosis of which type of vasculitis I have, all the docs are convinced it is WG but won't diagnose it till I've had my biopsy.

Shoop

[elephant]

Shooop, I had my gallbladder removed two years ago secondary to having on/off pain in my liver and gallbladder area. The surgeon was not surprised, given the history of my prednisone and other medications. The Hida scan detect a sluggish gallbladder, not the ultrasound of the Gallbladder.

[Shooppoop]

I will speak to my GP about this as the pain is still there, but no where near as painful as when I went into hospital. As for it being a result of drugs the hospital is still refusing to put me on anything, especially since my last blood test showed a drop in my CRP and c-ANCA. All I am taking is ranitidine for acid reflux which is one of my new symptoms that may or may not be related.

[elephant]

If your on prednisone, yes you need a ranitidine. I still take Nexium on/off because of the immunosuppressants and I am on 3 mg of prednisone.

[Shooppoop]

I would understand the acid reflux if they had put me on prednisone but they keep refusing to put me on anything as they don't want to mask the symptoms before they've made a final diagnosis. Apparently this isn't an issue because I've only got mild symptoms and no kidney involvement.

[maria garcia]

Shooppoop, I have somone who I can finally relate. My daughter had eye issues that didn't go away I was sent to a rheumatologist. I went to a rhemy had blood work done and she was positive for Panca and MPO. Per her RHEMY.(which I dislike) this was not a diagnoses just Markers and didn't make a big deal. He said we just have to go by symptoms to figure out which vasculities she had. 6 months later we still don't know. He ruled out her eye problem as NOT being vasculities related. But after four doctors and her condition kept getting worse I just went to the best specialist in eye care her in Miami even though he is not participating with her insurance he specializes in eye conditions due to immune disorders. immediately he said it was related to vasculites and he sent her of to do a Biopsy in her eye. But told us it was vasculities and will be puting her on Meds most likely MTX. We are still waiting for the result. Maybe we can finally find out what type. Please keep a close eye on all your symptoms. Which ever vasculities if its immune related doesn't make much difference. There all very serious and medication for remmision( same meds are used) will be needed. Please try to get answers. I have been to 4 eye doctors and also 2 ENTs for the inflammation in her nose but they to did not want to perform biopsy and disregarded as Allergies etc. even though I insisted she has an auto immune and inflammation. Its been very hard to find answers. And bcse I have an HMO insurance its been much harder. Good luck. Please keep me posted.