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Thread: just saying hi

  1. #31
    mishb's Avatar
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    Quote Originally Posted by Sangye View Post
    Mine started with joint pain. I woke up one day with a finger joint in excruciating pain. It was only mildly swollen and hot, but felt like it had been smashed by a hammer. Over the course of 6 months or so the joint pain spread to every joint except my spine and became increasingly severe. I had no other symptoms until about 7 months in.
    Was nearly exactly the same for me except that it was the entire left hand and then a few days later the right hand ... not smashed by a hammer but slammed in a car door, then came the knees, hips, shoulder and ankles. It just crazily roamed around from one joint or muscle to the next every few days. I was diagnosed with RA even though my GP didn't believe that it kept changing areas. The sinus, ear and eye stuff started two years later and then another 12 months before an ENT put it all together and came up with a WG diagnosis (actually the ENT was excellent and suspected it on my first visit to him, it was my GP that took so long to refer me to an ENT in the first place). Always complained to my GP that the anti inflammatories didn't seem to touch the sides. Better now that I am on Pred and MTX, only very mild (you know it's there) pain and a blocked nose.
    Keep Smiling
    Michelle


    Do you know why gaps between fingers were created?
    So that someone who is special to you, comes and fills those gaps by holding your hand

  2. #32
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    RudiK: I had great neuropathy in my legs and feet and as remission has lengthened (one year June 30) the feeling comes back very slowly. I can now walk fairly well and the numbnes comes and goes. If I do too much on Monday, Tuesday will not be so good. I have been working very hard also to lose weight and have noticed this also makes a huge difference..
    Dale

  3. #33
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    My joint pain started about the same time as my cough and fever. It was my right knee, then my left. it then started roaming as well. It was so weird at first, because I just thought I had the flu, but couldn't figure out why my joints hurt. By the time I was admitted to the hospital the pain had settled into several joints at once - primarily my shoulders, elbows and knees and ankles. I moved like a very old man and I couldn't feed myself (not that I had an appetite anyway). A couple mega doses of prednisone in the hospital and all that was gone. Fortunately I haven't had to deal with joint pain since...just all the other stuff (anyone know at what dose of prednisone the moonface goes away?).

  4. #34
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    well my moonface has just about gone and im on 5mg

  5. #35
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    Quote Originally Posted by penguin View Post
    well my moonface has just about gone and im on 5mg
    I've got a ways before I'm at 5mg/d. I guess I need to get use to the new face in the mirror

  6. #36
    delorisdoe is offline Registered User
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    I find that when ever I am put back on prednisone I stare at my face non stop and i see the beginings of a moon face no matter how hi or low the dose is. I am sure it is there. It does decrease as the dosage decreases but until I was below 10 it did not go away. It may have been a smaller moon but it was a moon. Once the prednisone got low enough the moon face dissapeared completely.
    lightning crashes
    leigh

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