what to look forward too

[Hammy8241]

I'm hurt Sangye.
I'm still alive so it must be working

[jmmilliorn]

Hi- just wondering if anyone could give any insight into what we could expect from now on... is there a diet we should follow? any physical exercise that should be done? any do and donts as caretakers and any dos and donts for Erik- would be greatly appreciated. Like i said previously, we are going blindy into this as most of you did so we are looking to you for any advice and any insight is greatly appreciated.

hope you all feel healthy soon

Best wishes to you on your WG journey. You will benefit from reading as many of the posts as you can. You will begin to get an overview of the disease and what to expect. Some of the Weggies may have more severe cases than you, and some may have fewer symptoms. One thing we all learn is that Wg is different for everyone to some degree, but there are similarities and there is a lot of good information. For me, finding out that others were experiencing the same symptoms and feelings made me feel less alone out there. I didn't know if I what I was experiencing was normal for the disease or not, just side effects of the medicine or totally unrelated altogether. Sometimes it isn't easy to tell. You can post or email anytime if you have questions.

[Sangye]

I'm hurt Sangye.

Are you kidding or serious? I would never want to hurt you, Hammy.

[vdub]

Some of the Weggies may have more severe cases than you, and some may have fewer symptoms. One thing we all learn is that Wg is different for everyone to some degree, but there are similarities and there is a lot of good information. For me, finding out that others were experiencing the same symptoms and feelings made me feel less alone out there. I didn't know if I what I was experiencing was normal for the disease or not, just side effects of the medicine or totally unrelated altogether. Sometimes it isn't easy to tell.

Both of Mike's points are absolutely true....

[Hammy8241]

Are you kidding or serious? I would never want to hurt you, Hammy.

Kidding sangye, like you i'd never deleberatly hurt anyone on here - even with pred rage!

Sorry if I worried you.

[Sangye]

Okay, whew! When I'm really sick my joke detectors can dysfunction.

[pberggren1]

Okay, whew! When I'm really sick my joke detectors can dysfunction.

When I'm on pred my joke detectors go haywire!

[Lightwarrior]

Okay, whew! When I'm really sick my joke detectors can dysfunction.

Mine too Batman, I don't understand why everyone doesn't think I'm funny.

[jennerik923]

thank you for making me laugh.. sad thing is a know what spotted dick is...the food that is..... Erik unfortunately has already had a bout of the pred rage- but mostly aims it towards his sister and mother =(- easy targets I guess... Chemo txt plan was successful- two wks from now another 3 days of treatment and then we shall see. Do any of you know if there is a WG research fund. We want to have a walk to raise some money but dont know if there is any fund and i havent come across any in my research... tks again

[Sangye]

What a great idea! The Vasculitis Foundation funds a lot of Wegs research and is non-profit. They will also help advertise your event via their newsletter and website.