vancouver island

[nigel]

hi i was diagnosised in sept 2009 with wg, ended up in hospital for 7 weeks 2 and a half in icu after geting the disease into remission i went back to work for 8 months and almost off prednisone i,ve had a flare up which has lasted for about 6 weeks my doc changed my meds again last week now on 45mg of preds and 200mg of cyclophosphamide can anyone let me now how long a flare up usually lasts for,also just moved from alberta to vancouver island and i,am hoping there might be some support out here.

[pberggren1]

Welcome to the Forum Nigel. Geraldine on the Forum here is from Nanaimo I believe. How long have you been on the cyclo and higher dose of pred?

[nigel]

i was on 175mg of azathioprine and 40 mg of pred but the flare up started to get worse and the doc changed it back to 200mg of cyclo last week and 45 mg of pred but hasnt been much change yet, still having alot of nasal and sinus pain, and still oozing blood. Were living about 20 mins out of nanaimo.

[pberggren1]

do you have a good doc Nigel?

[nigel]

had a pulmonary doc out of edmonton but i have just been reffered to a doc in nanaimo

[Sangye]

Hi Nigel, welcome to the group. Unfortunately there is no way to tell how long a flare will last. Some can be treated quickly with minimal meds and others require the stronger drugs. The best thing you can do is get a good Wegs specialist involved in your care. One of the Canadians (I think it was Marta) recently posted a list of Canadian references to find a good doc.

[Daggar]

Hello Nigel,

Sorry to hear about your flare-up... sounds like the WG moved with you from Alberta?

Here is the hyperlink that Marta (Jasper) posted a while back.

http://www.canvasc.com/pdf/core-list-Feb-2011.pdf

[nigel]

thanks for the link daggar it might help, just heard from my new refferal doc yesterday who's in vancouver so i geuss i'll see how that go's