Hi my name is Kami and I am a Weggie! :)

[NicShaf]

[QUOTE=Kami;38737]My Rheumy assures me that I am a normal healthy person I just have this disorder that we have to monitor and treat and that he is going to help me as normal of life as possible..


Welcome Kami! I'm glad you have found this forum, it will prove to be invaluble in your treatment and recovery process.
I love what you said above about your Rheumy assuring you that you're healthy, this is just something to monitor. That is such a great attitude to have. It sounds like you are doing well with everything, I love to see possitive thoughts being thrown around.

Best of luck with the RTX, I hope it works for you.

[vdub]

I was diagnosed with pernicious anemia and Reynaud’s

Very interesting.... My Dad has a bad case Reynaud's and I have a very mild case. But, like you, I have pernicious anemia. I inject B-12 twice a month and will have to do that for the rest of my life. Mine is caused by a loss of intrinsic factor, which at one time I had tied back to my hypothalmus (I believe). The B-12 issue is one thing that I have had trouble going back to the root cause on. In addition to the B-12, I take desmopressin -- it's the most expensive drug I take.

Also, like you, I believe I have had WG for years and not known it. I'm guessing that I have had leg issues (the tingling you mention) for maybe 15 years or so -- maybe longer. I still have the issue, so maybe it is something else. However, my WG isn't in remission yet as far as I know. Anyway, I'm still taking a lot of mtx, so I'm guessing I'm not in remission. I certainly don't feel like. Aches and pains every morning until I get drugged up.

Hope the rtx helps.

[Kami]

Thank you everyone for the wonderful welcome, it is nice to meet you all. It's kind of like I have been watching this movie or reality show for a year and now all the characters are talking TO me!