New from Calgary, Canada

[marta]

Hey Jeff,

I'm from Jasper, and a couple of months ago I did an intensive search through the Alberta College of Physicians and Surgeons for doctors in Alberta specializing in vasculitis - I too am looking for a someone who specializes in vasculitis in Alberta. I cross referenced it with what patients think about them and I found someone totally noteworthy in Calgary. I haven't seen him, but he was first on my list for getting a referal to, his name is Dr. Steven Edworthy and he's a rheumatologist in Calgary. Just a thought. Not sure who you're seeing, or even if he's good, but I got a good gut feeling about him and who knows, he might be awesome. That's what his patients seem to think on the rate a doc site.

Take care of yourself, ask questions, and if it is indeed Wegener's you gotta be on top of it, and be your own best advocate. I too was in super shape before this thing wholloped me and it's a hard pill to swallow - pardon the pun, but if you're on top of it I think things can happen and turn in a good direction. I'm holding my breath.

[Jeff vinc]

Hi Marta,

Thank you for all your info and your support! I've been able to book an appointment with my rheumatologist and he is specialized in vasculitis and he knows a lot about wegener apparently. He is very good from what i heard. I've seen him once before but for a short period of time. If you want i can give you his info. His name is Dr Liam Martin and he is located in Calgary. Just let me know if you want his phone number i will give to you. I will see him next week and i also have my appointment on December 20th with my neurologist. I am going for blood test tomorrow morning. I will post again when i will have some results. Who know it might help.
Thanks to all for your support, it is really nice and surprising to see this.
Peoples in general doesn't know anything about this disease so it nice to be able to share discussions with persons in same situations.

[pberggren1]

Welcome Jeff, you will find this Forum the next best thing to your source for Wegs info besides your doc, that is if you have a Wegs specialist. I am in Swift Current, SK and actually have a Wegs specialist here. He is most likely the only Wegs specialist in Western Canada.