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Thread: 'Limited' Weggie introduces herself...

  1. 10-23-2010, 02:52 AM #21
    JanW
    JanW is offline Registered User
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    No, my doc has never done that. But for many whose doctors have never treated WG before, this is a sad reality I heard many times at the Symposium.
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  2. 10-23-2010, 09:06 AM #22
    chrisTIn@'s Avatar
    chrisTIn@
    chrisTIn@ is offline Registered User
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    Yeah. That's a sad reality.
    Wegener's is what is called an 'orphan disease'.

    We here are lucky to have a diagnose and a treatment, but I believe there is much more research needed,
    because too many drugs have bad side effects...
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