New Member from Australia

[Jack]

plenty of WGs are getting off of all meds entirely, you know. It wasn't uncommon to meet med free people at the Symposium (particularly ones diagnosed within the last few years, rather than the last 10 or 20)...I met a few that hadn't flared past inital dx.

That has got to make good reading for a lot of our members!

[JanW]

I would say that the med free people I met were typical patients -- middle aged, women and men, anywhere from 40-60, who had become med free anywhere from 1 to 3 years after diagnosis.

And while the researchers were saying that the oft-quoted, "50 percent of patients continue in remission after their symptoms are under control" is probably too optimistic (now most will say that most patients will flare at least once), there are people who go decades between flares without meds. One guy I met had been off for about 25 years (currently back on and actually having a bad time of it -- his issues were mainly of the ENT variety). One woman I met was dx maybe five years ago, had been off all meds for about two. I think she got into remission on mtx.

[elephant]

Thanks JanW for the information.

[dunkie2202]

So there is some HOPE that we will make med FREE remission

[JanW]

Absolutely!

[Natalie]

lol sorry had to chuckled at this dunkie .. this was one of the things that really stood out when I was put on high doses of pred I thought something was going to come out of my back !
Buffalo Hump is that what yous call it sangye !