New member, from Norway

[Elena]

Great to hear the surgery went so well Elena - what was involved.

The lower part of my trachea (where it splits into two) and primary bronchi on the right side was involved.

I still cough a bit, cause it feels like there's "something" down there that I need to get out .. The doc said I could expect to cough up a little blood and stuff after the surgery, but it's been two days now. And there's no blood. Do you know if that's normal?

[JanW]

I actually meant what kind of surgery did they do? Cut into it, dilate it, both, something else?

I don't know if that's normal -- I didn't have that, but I didn't have surgery on that part of my trachea either.

[Elena]

Oh , uhm they used laser to cut into the scar tissue and then dilated it with a balloon.

[JanW]

Hopefully you'll have great success with it then. That must have been some tough scar tissue, to have to go at it with a laser...glad they got it. Did they coat your trachea with myomicin-c as well?

[Elena]

I don't know , they didn't mention it. Maybe. I got some antibiotics and Solu-Medrol afterwards, but I don't know what they did during surgery..

[JanW]

You should find that out. It's considered standard of care here, though dosage varies widely. It seems to help retard the growth of scar tissue -- it's basically putting an immunosuppressant right on the wound.

I'm sure they would have given you antibiotic to retard infection and pred (Solu-medrol in your case) for swelling.

[Sangye]

Elena, you can get that info either by asking the doc who did the surgery or by getting copy of the surgical notes.

[Elena]

The Norwegian specialist gets most of their knowledge on WG from the us and other countries, as Norway has such a small population and therefore not that many cases of WG. Which is why I'm guessing they did coat my trachea with it. I'll ask and make sure when I'm going to the hospital again, but that's not for another 2 months ..