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Thread: 20 year old son

  1. #171
    Aneinu is offline Registered Member
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    Quote Originally Posted by carriej22 View Post
    Sounds all so similar. I just wanted to come here to wish you guys well and that this can be beat. I am 27 now, was diagnosed at 22. First two years were rough. After my final round of Rituxan it took me about a year to get my breathing and coughing under control. I run up 3 flights of stairs now about 15 times a day. Doesn't wind me in the slightest. I still cough more than the average person. However I do very well, work full time... no complaints. He's got this!
    Thank you for that encouragement.
    Do you take steroids still?
    Azathioprine?
    Stay strong.

    Sent from my SM-G920V using Tapatalk
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  2. #172
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    Gab122 is offline Registered Member
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    Quote Originally Posted by carriej22 View Post
    Sounds all so similar. I just wanted to come here to wish you guys well and that this can be beat. I am 27 now, was diagnosed at 22. First two years were rough. After my final round of Rituxan it took me about a year to get my breathing and coughing under control. I run up 3 flights of stairs now about 15 times a day. Doesn't wind me in the slightest. I still cough more than the average person. However I do very well, work full time... no complaints. He's got this!
    that is so good to hear @carriej22 !
    Thanjs for sharing!! Something to hope for!
    Aneinu likes this.
    Trust in the Lord with all your heart
    and lean not on your own understanding;
    in all your ways submit to him,
    and he will make your paths straight.
    Proverbs 3: 5-6

  3. #173
    Gab122's Avatar
    Gab122 is offline Registered Member
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    Quote Originally Posted by Aneinu View Post
    We were very pleased with the doctors in UH as well.

    The rtx was completed and he took it well thank God. The main thing they are watching now is the lung/breathing issue. Baseline is 14. He came in at 12, dropped to 11.8 and now 11.2. Pulse ox is continually in mid 90's, so that is good, although he has shortness of breath at times (which he wants to disguise, for he knows that is the key to discharge). They will probably need another CT scan on lungs for ultimate discharge. Actually, scratch that. Rheumy fellow just came in and said that they wanna see hemoglobin stable before discharge. CT scan probably only if things get worse. His breathing is good, but not perfect (whose is?). Coughing is still there. Interesting that his joints are feeling better, which we assume is result of steroids.


    Sent from my SM-G920V using Tapatalk
    I'm hoping he is discharged by now and home doing well! Keep us posted @Aneinu !
    Aneinu, me2 and Alysia like this.
    Trust in the Lord with all your heart
    and lean not on your own understanding;
    in all your ways submit to him,
    and he will make your paths straight.
    Proverbs 3: 5-6

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