Off cytoxan

[wgrebel]

I am now off Cytoxan. I was diagnosed October 23, 2009 with WG & had my first infusion of Cytoxan via IV on October 24, 2009. I began taking 200 mg a day by mouth November 23, 2009. I was on 200 mg a day from that point forward until July 13, 2010 when I had to go to the hospital because my white blood count was .6 due to the Cytoxan. My specialist admitted me to the hospital in Nashville, TN and informed me that the Cytoxan had put my immune system into a state of shock. I was in the hospital for eight days and released on July 21, 2010. About a month before I went in the hospital I had began to get really fatigued and sick and have basically not felt like doing much of anything. I have started Rituxan & have had my first Rituxan infusion. I had no reactions to the Rituxan & apart from being in fight with my insurance company over the drug (I will explain & ask for advice in another post) I am to get my secon infusion of Rituxan on July 30.

[Sangye]

And that will be the beginning of your recovery, I'm sure.

[pberggren1]

Well, it sounds like you are on the right track wgrebel.

[DEE]

Glad to hear someone coming of cytoxan im working towards tappering down as i take tablet form next move could possibly be Imuran
Hope all goes well wgrebel DEEx

[Lightwarrior]

I saw my Rheumy today I start Methotrexate tommorrow (Saturday, oope thats today already). I am to take 25mg once a week and drop my cytoxan from 200mg a day to 100 a day for a month, with the exception of Saturdays when I will only take the methotrexate. At the end of the month I will stop cytoxan altogether and continue with Methotrexate. He started me on folic acid and wants to leave my pred at 15 until we get through this first month of the switch.

[pberggren1]

I thought that Methotrexate was usually taken every day instead of once a week?

[Hammy8241]

I thought that Methotrexate was usually taken every day instead of once a week?

I'm weekly

[elephant]

It's usually once a week.

[JanW]

It's once a week, which is why both patients and docs like it. I'm on 15 mg/weekly.

[Sangye]

That's great news, LightWarrior. Do you feel comfortable with that?