
Originally Posted by
marta
Hi again, I did consider trying it but my doc at the time decided against it as there was too much on the plate to go through that as well. We also have a small hospital and I probably wouldn't feel super safe in case something went wrong.
So I haven't been on Bactrim but I'm on Dapsone instead. I've been taking it every day since diagnosis and no ill side effects. It's a pill so I pop it with all my others. I know that Bactrim has a mysteriously positive side effect on those with sinus involvement - which I do - so I was kinda bummed that I couldn't take it, but like I said the dapsone has been fine. I think those are the three choices. Bactrim, Dapsone and the pentamadine nebulizer. Maybe you could ask if you can try Dapsone. They wanted to take me off it at one time when my liver was acting up but then using Sangye's words of wisdom I sleuthed my liver issues to active disease and not the Dapsone - which has been proven to be the case since then.
Hope this helps.