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Me too. Mostly I hope that I can feel strong enough. To me it's no victory to say I'm off pred and HC but not be able to get out of bed.
There are various supplements to support adrenal health based on what is needed. I don't use OTC versions as they are terrible quality. It is definitely NOT something you should try yourself as you can get into a lot of trouble--including waking up the Wegs. Even people without Wegs or a history of pred use should not use those supplements without a holistic doctor's help. It's very tricky business. The adrenals make 40 hormones and control a number of bodily functions.
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If I have trouble weaning off pred I might go back to my naturopath and see what she thinks. I am at 8mg right now and should be going down to 7mg next week. I think that once I get down to 5mg I might try going down by half a mg every 2 weeks. But I will see what my doc says. He already told me most people do okay by going down 1mg per month to zero. You are right it is no victory at all if you cannot get out of bed if you are off of the steroids.
Phil Berggren, dx 2003
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That's a good plan, Phil.
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