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Thread: how long one should be on maintenance doses beyond remission

  1. #11
    elephant's Avatar
    elephant is offline Registered User
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    You need a second opinion. Having blood and protein on and off is a concern and needs to be watched carefully. How is his blood pressure?

  2. #12
    pberggren1's Avatar
    pberggren1 is offline Phil Berggren, dx 2003
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    Quote Originally Posted by jeriorleans View Post
    My son, age 13 at diagnosis was only on predisone for a year. He was on cytoxan for 4 months than changed to methotrexate. HIs doctor says that the goal is at 2 years to be drug free. On a side note, the only time his ANCA was negative was when he was on cytoxan. He has had blood in his urine for over a year now and protein off and on. kidney doctor still finds it a mystery.
    I agree with what elephant just said.

    Have you seen a urologist?
    Phil Berggren, dx 2003

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