gah! pred leg cramps

[NicoleB]

as some of you know, i'm still not yet diagnosed, but suspected of Wegs. anway, they have me on 3 weeks of pred to see if i get relief.

i'm at 25 mg right now, and feeling good except for horrible leg cramps! and i know that 20-25mg is not a high dose, so i dread having to potentially go high dose with legs that already hurt this bad. i cant sleep!

does the body ever get used to the med and stop the cramps, or is there something i should be doing?

[Sangye]

The body doesn't get used to the pred and the cramps can be a big problem even at lower doses. Take magnesium and make sure you're getting a bit of salt in your diet. Not too much salt or you'll get very bloated and gain weight easier on the pred. And too much salt with pred will also increase your sweating.

Just to make sure... Do the cramps go away or are they constant day and night?

[NicoleB]

they start about 7 hours after taking the pills, and last maybe 6 hours and then subside. which is why i will have to time my dosing so it doesnt hit me at midnight like last time!

[shadow]

I have also been having leg cramps, mine are at night. I have just switched from cell cept to ctx, pred down to 12.5 mg. I have taken mag and potassium without help. New rhum states this can be the WG last night only woke up once, took vicodin at bed time.
Shari

[Psyborg]

I had leg cramps when I had a higher does of Pred, after I got to 15mg they seemed to clear up.

[Sangye]

Shari, I've never heard of leg cramps being due to Wegs. Is that from a Wegs specialist? Why would Wegs cause leg cramps?

[shadow]

She is not a specialist in wegas but did train under doctors at uof m that were treating wegs. So far every thing she has said or done seams to be on line with every thing I've read here. I don't just go wirh the flow anymore. She stated thatr it can affect the muscles. I have had potassium, magnisum and b-12 checked all nl. Only thing new iis the cytoxan.

[Chris G]

Shari - I see docs at U of M. Do you see docs there? If so, which docs, and for how long?

[shadow]

I see dr mohan in lansing now. She interned at the u. Everything so far that she has told me has been confirmed here. She is the first rhumy that has not been shy about taking the bull by trhe horns. Stated if I can't get under 15 mg pred I have nevere been in remission. Diag 1/2007.
Shari

[Sangye]

I think that is definitely true, Shari. You should at least be able to get to 10mg pred. If not, the Wegs dog is still prowling the neighborhood.