Wegener's specialists in the southeast?

[Hakmanson]

No and that has been my complaint to all of my Dr's....I've been on the meds since 11/8 and don't see a single Dr until Dec 9th! Is that too long? I've tried and tried to get in earlier and even on cancelation list. Before I left the hospital, the hospital is the one that made all of my appointments

[drz]

No and that has been my complaint to all of my Dr's....I've been on the meds since 11/8 and don't see a single Dr until Dec 9th! Is that too long? I've tried and tried to get in earlier and even on cancelation list. Before I left the hospital, the hospital is the one that made all of my appointments

I wouldn't be happy with that scheduling. I left hospital after two day stay on Nov 17th and have one follow up set for Nov 29. I was also refered to another specialist and contacted her this morning and saw her this afternoon. I did have to cancel my appoinment with my rheumatologist on 17th while in hospital and it is rescheduled for Dec 8. However he is monitoring my lab results every three or four days and adjusting my meds as needed so I feel comfortable that I am am being followed adequately.

Is there anyone to help you that is good at working the system?

[elephant]

Hakmanson, I hope you were able to call either the kidney doctor or rheumatologist ( the one that your going to see) and leave a message with her nurse. They are nice there.