cleveland clinic

[terrilyn18]

I don't understand how you are living in one state and being treated in cleveland. Do you have doctors where you live? Do they correspond with each other? How often and for how long do you go to cleveland? I'm very unsure of anything any more. Just like I forgot about drinking a lot of water. Joe drinks alot of water all the time so it was not in the formost thought. I really appreciate all that I have read on this site. Sometimes I just have to stop breath and start again. Joe has been very good about all the questions I ask. We talk about everything I read. Sometimes he remembers sometimes he doesn't. I think he just tries to forget. Glad to have people that understand at my figure tips.
Thanks

[elephant]

I have a local Rhuematologist and I see her every 6 weeks and then I am trying to see my WG specialist every 6-8 months. I figure I have only one life to live and I have alot of damage done and still not in remission. I just want to have great care from someone who knows Wegeners disease inside and out and up to date.
One day at a time Terrilyn, in your own time just make the call. There is so much to learn. You will get alot of support here.

[terrilyn18]

I will include you in my prayers for a remission. Is there a specific Doctor or group of Doctors we should call? Thank you for your help.
Linda[ terrilyn]

[elephant]

Terrilyn, I see Carol Langford at the Cleveland Clinic in Ohio. She is great! 216-445-6056 or 216-444-5632.

[Terri]

Hi elephant,
I have an appt. sept. 21st to see Carol Langford. I'm so excited!!

[elephant]

Yahoo! I am so glad you are seeing her! She is very good. Don't be afraid to ask questions. Bring your list of questions with you.

[Sangye]

Terri, that is great news!! You're going to get the best care now. I'd put a bunch of smileys but I think Elephant used up the page quota.