A loved one is sick and in a DCU. Diagnosed with Wegener's 5 years ago, went into remission about 1-2 years ago. Had mild diarrhea for 9+ months, then diagnosed with CMV cytomegalovirus then put onto anti-viral meds about 1 month ago. (CMV is common in 50-70% of population ... but bad if your immune system is compromised).
He has been in & out of ER with extended hospital stays since March 1, 2010. In the last month has been regularly running high fevers, not 100% coherent. Has been on Vancomycin for the last month. Is on 3 other antibiotics also now. They lowered the meds for Wegener's to try to help his immune system fight back more.
Now, they think he has pneumnia and endocarditis (infection in lining of heart tissue). He's vomitting, running high fevers, and we think this might all be related to the Wegener's but there is no one who can figure this out in Chico. Too small of a town / hospital for this. We want to get him transfered to a better hospital & doc. Where shoudl we try to get him transfered? UCSF, Stanford, UCDavis, CPMC??
Who knows which hospitals & docs have seen the most Wegener's patients in California / Nevada or Western US?
Are there any Wegener's specialists in SF, bay area, Sacramento or nearby?