It looks like whatthewhat has some good suggestions for pediatric specialist to look into.
I currently see a rheumatologist at Ohio State, and she's absolutely wonderful! She specializes in rheumatology and pediatrics, and I know she sees some kids with wegs. She is associated with Ohio State and Nationwide Children's Hospital. I highly recommend her! I contacted her via email while looking for a doctor with experience, and after talking with her I knew Columbus is where I had to move. She stays on top of my blood work and takes so much time to listen to any concerns I have. You can always contact her with any questions you may have. Her name is Dr. Stacy Ardoin, if you want to look into her as another possibility.
Last edited by rebekah; 11-13-2016 at 10:49 AM.
Nothing can break you; you are much stronger than you think... look at what you've already survived.