Dr Hellmann at JHU

[Sangye]

Thanks, Jack. I'm outraged as a patient and as a doctor. If one of my patients ever says "I want a second opinion." I say "Absolutely. I don't need to know who or why unless you want me to. It might help them to see your records from me. Would you like me to send them your records and a summary, or would you like me to give you the copies?" If I send them, they'd have to reveal the name of the other doc, which might make them uncomfortable. That's why I offer to give them copies. I don't care who helps my patients best, I just want them to be well and feel comfortable.

Besides, they are people first and "my" patients second.

[Jack]

The only time I have ever asked for a 2nd opinion was from my pulmonary consultant who did not seem to be doing much for me and did not want to get involved in any discussion. He was fine about it and asked no questions, but referred me to a different doctor at a different hospital. Unfortunately, the new one could not do much for me either.

[onatreetop]

I cant wait to go to JHU either. i did have three of six test done yesturday . catscans, Sinus and lungs and than the angiogram.Next is the ENt and the neor. for the emgs of feet and hands. Ihope to have all the results before I go to JHU next week. The sleep study wasnt changed it is still mon the 18th.These were all ordered by Soloway. That and extra blood work to check thyroid and some other things? why I drug my prim doc into it when I couldnt get bonehead last week. He has little understanding of most of this but does listen and can tell after our years together that I am truelly upset and scared. So I am keeping my head at the moment . Finaly bought a good size daytimer to keep everything orginized and together with phone numbers etc. appt times note and list .You have the picture. So now I walk in with my book and cringe!!! Thats what I have to do to keep it all straight. I am ok today slept more the last two nights and what a difference. My friend is coming to do my cut my hair tonight I cant wait. My moms too. I dicide to make turkey tonight I must be feeling good. So today will be a good one. I clean a new house today too. So more income is good too.

[moyan]

Hi, maybe you should cancel with the doc until you have talked with the ones at JH. They might have the latest finds on tests like MRI.
Luck to you and try to find something to smile at!

[elephant]

Onatreetop how long does it take for you to clean a house? Do you feel tired after that? I can't even clean my house in one day. Need to break it up. I'm impressed!

[onatreetop]

I had 3 scans done yest. and have to see the ENt for the biopsy and a new neorlgist for the EMGS. I am headed in a forwrd motion with My wonderful RAs request but cant wait to get to JHU next week. Hopefully there will be news today. How are you making out?

[onatreetop]

It depends on the house. First it is easier for me to clean any house except mine. To many other things that distract me or laundry, etc. When I go into a home I usually start in the kitchen which takes an hour or two each. Then will dust and vaccum the other rooms the last thing I do is the bathrooms because they can take twenty minutes to an hour and a half or more. I am at a house at least four hours and no later than 7- 8. 7-8 are like 3 or 4 full bathes with jacuzzis shower rooms etc. just like the pictures in magazines. It also depends on how many different kind of surfaces there are to clean , hardwood, tile, carpet, marble, limestone, etc. They all have to be cleaned differently. Most of them swept than scrubed and dried. So..................Yes I feel tired somedays more than others but I noticed if I dont do it I feel worse and ache more.
It would take me a couple days to do my own because of the stuff that needs to be put away or pickup and the laundry that never ends I think you know what I mean. i consintrate on the main rooms like kitchen, downstairs bath , living room and dining room. The rest is trashed most of the time. The areas we are in all the time and also are the same ones that other people might see if they came over are the ones that I worry about.

[elephant]

Wow, good for you. You can make good money doing that, to me it's a hard job. Have a great day.

[jola57]

First, good for you onatreetop. Go and see any and every specialist you can find, that is your right. I totally follow Sangye, my rheumy may not be the greatest, but I feel comfortable with him and know that if I wanted or needed a consult he would be all for it. Actually I already consulted "above" his head with a neurologist friend about having a sural nerve biopsy. My friend said no, so I said no to my rheumy and we did muscle biopsy. This was inconclusive and had to have the nerve biopsy anyway. The moral is, never did he ask why, he accepted my judgement and that is why I am grateful to him and still with him. I also like when he is so happy when my test come back good. It lights up his face. As I said he may not be the best, may not be available on email or phone calls but I know that if I realy needed him he would be there for me.
Definitely change docs if you can. You don't need a negative influence right now.

[onatreetop]

Thank you and yes I totally agree. I use to listen more and speakless. But now i am the one doing most of the talking and question asking! Theres a male nurse at the RAs office and he sees me come in the door out of 30 people and spots me right a way and says here comes trouble!! Well now I beat him to it and call him trouble ! It is all in jest but helps the waiting time pass. He is so funny!!! it's good to laugh at the docs office. Not with the doc if he smiles I feel good and he does. He cant believe how much knowledge I have gained and can talk to me in his lingo and I back. He said he was glad to see that I am learning and taking all of this seriously. Because he knows and I how serious this is. I am his healthist WG to date that he has seen and says he wants to keep it that way.

The work is good. The people very wonderful and happy with my work. It has always been a therapy of sorts for me. I have gotten to grow with tthem and there families. There isnt anything they could ask me to do that I wont for them and they for me. The pay is a great and I decide who , when and for how long. Cant bet that. I dont like to leave a house unfinished but sometimes I just have too go thats the only thing I feel bad about when it happens.They all know that my kids come first and if I need to go they are all understanding. My oldest house is 12 years that I have been coming. i took a brake after the kids were born 6 weeks and i was ready to get back to it. And boy where all those people glad to see me. They reallyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyy missed me. i kind of have a cleaning OCD at work. Not home gave up on my house years ago to out numbered but there is nothing like a beautiful house that shines when I am done. And yes most are upper class homes and gorgous!