Addenbrookes

[freakyschizogirl]

I have my appointment at Addenbrookes tomorrow. I'm excited and nervous at the same time. Is thre anything i should be discussing with the experts while i'm there tomorrow??

[Sangye]

I suggest you bring an organized list of symptoms and questions. It helps to organize your symptoms like "New, Worsening, Better." It gives them a good idea of the disease progression or other complications arising.

Write down your questions, too. It might help to organize them into categories like "Wegs, drugs, side effects, procedures/tests, treatment plan, communication (eg can you email your docs), etc....

Organizing like this really saves time. I can zip through my lists with Dr Seo and my other specialists and have time leftover for general questions about research, etc....

[freakyschizogirl]

Cool thanks Sangye...need to update my symptoms list!

[Sangye]

Also, include an approximate date for the onset and change (eg improving, worsening) of each symptom. They're going to ask you that, and it can be hard to remember dates when you're on the spot!

[freakyschizogirl]

Its hard to remember anything now thanks to Pred! Never thought i would get pred head, arrrrgh!

[drz]

Its hard to remember anything now thanks to Pred! Never thought i would get pred head, arrrrgh!

Ain't that the truth? Of all the things I lost from Wegener's disease, I miss my mind the the most.

[freakyschizogirl]

lol drz!!

I'm hoping mine will grow back. It will grow back right?? Any research on this??

[Jack]

And don't forget to take a list of your pills and dosage.

[Sangye]

And a nice snack.

[freakyschizogirl]

And a nice snack.

My sis will have that in hand...there's normally a KitKat in the car somewhere...