glad i speak a little german

[ian anderson]

hi my weggie friends well balloon dilation went well mon 5th july for my ts but by the 12th july it started coming back ah well das ist leben(thats life) anyway im seeing my ent surgeon tomorrow fri 23rd july however just last week just 2 weeks after balloon dilation i recieved letter from a german specialist in wg and respiritory diseases from the hospital i get treatment from dr hans hartung i wonder what this is about says i so anyway yesterday weds 21st july off we go to see him my wife came too anyway we spent the most facinating time with this german specialist it seems after reading my medical notes (took him almost a week to take notes he says) he informed me that iv"e been given the right meds but at the wrong times and not as much as i should have are you kidding says i iv"e had thousands of pills and treatments over 15yrs yes says he but i noticed that you initially were on preds and imuran and cyclophosphomide all at same time that is not the answer says he with wg the right way to admin drug treatment is thus preds with cyclo then stop cyclo say after 3 months heavy dose then still on preds add imuran (azathioprine) immumosuppressive to meds and stay on the course oh dear says i indeed says he not only that thats why your having a tough time and no rest from wg over those yrs and sorry to say we (his team of gathered specialists unknown to me at this time) have decided that my wg is now out of control and they have decided to in his words stop me from seccumbing to this nasty disease SOON oh oh anyway it seams im going into specialist clinic to start new program of tests and meds to try and make sure i see a 48th birthday as you can imagine my wife was pretty upset so in my best german (my wife doesnt speak it) i asked him my chances of success he said 50/50 with my wife already upset no further english was needed so my friends ill if i can keep you up to date with how im doing or more importantly what they are doing if the worst should happen let me say this im glad i came to the forum ive enjoyed albeit my short time here someone who loves me will let you know your scottish friend Ian xxxx

[JanW]

Hope you have great success with your new German specialist, Ian, and I'm sorry to hear about the stenosis coming back so quickly. What did they say that they can do about that?

[elephant]

Ian your wonderful spirit will get you through this, love your positive attitude. I am too glad you are seeing a good specialist. Your in good hands Ian.

[DEE]

Hang in there DEEx

[Jack]

Ian,
Glad you have found someone who seems to know what they are talking about. The treatment regimen he describes sounds very similar to the one I was on.

[Lightwarrior]

Ian,
I wish you the best. Your German specialist sounds like he knows what he is doing. Usually the cyclo and preds can help to back off Wegs from the critical point. I am wishing you a Happy 48th Birthday early and hope to wish Happy Birthday again on your 48th Birthday. Hang in there and know that we are thinking of you.

[Lola]

Happy happy birthday, Ian!

[Sangye]

Ian, I'm sure glad you're getting care from someone who knows what he's doing. At last!

Now enough of that 50/50 talk. Many of us have been at Death's door so many times we can give tours, and we're still here. You will be, too. Your new doc is going to find the right combo of drugs that works for you, and it'll work fast enough.

I'm not wishing you an early Happy Birthday. If you wanna hear it from me, you're just gonna have to show up on the right day. Hugs to you, my friend.

[pberggren1]

Ditto to what Sangye said Ian. I'm glad to hear that you have a good new doc on your team. That can make a huge difference.

[DEE]

Ian im still trying to get to some kind of remission change drugs as often as socks ! recovering still from blood clots in lung but the one thing that keeps me going is one day at a time and looking forward to my birthday bq this week and listening to these guys on here ,
glad you found a new doctor look forward to wishing you a happy birthday hold on in there DEEx