Alochol

[elephant]

Happy Camper are you having any other symtoms besides the tight lungs? I had the video assisted thoracic surgery march 2009. It still is not perfect because of the scar tissue. I did feel like my lungs were tight and but it has gotten so much better. Every night when I go to bed and lay down on my left side ( chest) It feels tight like something is there. I had two CT scans and everything is fine so far. My thoracic surgeon says everyone is different and some people can have pain up to 6 months. Since we are on immunosuppresant medicines it takes longer for us to heal.....as you already know. So I just think the reason why I feel tight when I lay down is that my body did a "SLOP JOB!" of healing itself.

[Happy Camper]

Well my pleural rub came back last week. I called Dr. Langford right away. I was so upset and mad. My dr. here could also hear some fine crackles in the bases of my lungs. Dr. Langford said to get a ctscan, so while waiting a day to get it the rub went away and I was feeling better. I called her and talked with her and she I could hold off for now and go get it if I get any worse. SHe said its either from scar tissue or I'm just noticing more now that I'm going down on the steroids. I'm down to 30mg right now. Or she said it could be from the wegeners acting up causing inflammation. All my blood work came back good this week and the rub is pretty much gone. I just have this tight/stiff feeling across the base of lungs that wraps around my sides esp. when taking a deep breath. Also if I sit long (like at night-b/c thats pretty much the only time I sit in a day) it's stiff feeling. I did notice that if I lay on my stomach my lungs feel much better??? My next follow up Ctscan is Oct. 10th I"m hoping to not get a scan until then, I get nervous about all that radiation. My kids also have the flu/cold/resp. virus whatever again- I can't believe this. We just can't catch a brake over here. I'm hoping not to catch it.

[Jack]

I think it is worth getting a scan if you have lung pain. After a little nagging from the forum I did that last year and it turned out to be a pulmonary embolism. Something us Wegies are prone to.