Just Diagnosed

[Sangye]

I have been trying to force myself to slow down-from all your guys advice with the pred/energy. Esp. at night when the kids go to bed I'm trying to rest and relax, and slow down. Yesterday I had 12 kids here on a water slide. LOL kids show no mercy to the sick.

You're doing great! At least you weren't on the water slide with them all day, right? At any rate, I bet 12 giggling kids was a good trade-off.

Ok what about Cytoxan-so far so good. I have been on it for 6 days. Felt a little nausead yesterday for an hour only. Is this going to get worse? What about hair loss, when does that usually happen, if it does?

I was on 150mg/ day oral ctx twice. Both times I had to split it into 3 doses-- one with each meal-- to avoid terrible stomach pain. For this drug, it doesn't matter how you split the doses, you just have to get it all in during the day. The only reason for getting it all in earlier is that you'll be sure to drink enough water and have time to pee it all out before the middle of the night.

That wasn't an issue for me--either the pred kept me up or I was already going to the bathroom. I got all my doses in by 6pm each night and had finished my 1.5 liters of water by about 8 pm.

I had minor hair loss--that seems to be the most common. It started about 2-3 months into it. It grew back once I stopped but has a different curl. Since my hair is only 1/4 inch, that means it doesn't stick straight up anymore--starts to bend closer to the root. Curlier hair after chemo is quite common. But Jack is right-- everyone reacts so differently that there's no point in worrying about it.

[Happy Camper]

I have wavy curly hair. Maybe it will make it really cute curly hair. Maybe a plus out of this LOL!.