Big appointment today

[LisaMarie]

Ok guys keep me in your prayers...I go see the WG specialist today to review my echo ...get labs drawn and hopefully get a game plan....while I am there I will try to get an update on my Rituxan status...and try to not have to talk to the uncaring hateful nurse that I have to go thru to get to the Doc....it took her 4 days to return a call reference my nausea...ughhh....Will try to communicate in a proper way so they will listen....I am concerned about my echo changes and the fact that I am coughing up thick yellow crud, my nose is dry and crusty even with the rinses and my voice is starting to change....have dry eyes now...and my right jaw and ear are killing me...and last night my joints started aching ...ughhh...sorry to go on...Will keep yall posted

[andrew]

Yup! keep us posted. We're with you...even if you can't see us ;-)

[Hammy8241]

Go give them hell LisaMarie...you know you will enjoy it really.lol Good luck. Anyway a bigger challange awaits you upon your return....... getting that profile photo to upload.

[JanW]

Good luck, LisaMarie. Hope you get some answers.

[Lightwarrior]

Write down all your concerns on a pad of paper or notebook and check them off as you ask and get answers. I have found this helps. Make sure you give them every ache and pain. We are all with you, just imagine our group all standing behind you growling at the uncaring hateful nurse (lol) Let us know how things went. You are in my prayers.

[elephant]

We are here for you! Let us know how things are going!

[DEE]

good luck DEEx

[LisaMarie]

Write down all your concerns on a pad of paper or notebook and check them off as you ask and get answers. I have found this helps. Make sure you give them every ache and pain. We are all with you, just imagine our group all standing behind you growling at the uncaring hateful nurse (lol) Let us know how things went. You are in my prayers.

I have a typed list
lol....and a typed list of meds...and an expand file with test result and all the insurance stuff....don't want to depend on my fuzzy
brain...lol....and being a nurse...i have a few choice words for that nurse and if i have my way...will not have to deal with her anymore...in the waiting room now thanks for all the support

[jola57]

Good luck LisaMarie, hope you get some good news.

[LisaMarie]

ok...it was a long informative as well as interesting visit...off methotrexate...will start iv cytoxin or rituxan the week of the 20th....increeased my pred to 60mg per day...from 20 mg per day....gave me a script for clonazpam for anxiety if i need it with the increase in pred:.will recheck echo is a year....not to concerned with the hypertrophy....more concerned with gettingWG treated...meth was not working and i got to many side effects from the small dose i was on....FYI you can not take bactrim with methotrexate...it causes toxicity and can kill u...i will now be calling my specialist when i have a cold.....thank God i did not start the bactrim.....nurse and i spoke we will see if it changes anything....and I can still do my florida escape...yeah....it may be my last escape for a while.....hope u all have a great weekend