Coughing

[elephant]

Barb, what medicines are you on now. I am in medical ( medicine remission) and I take Cellcept, cyclosporine, prednisone 7mg and Bactrim for the WG.

[Barbara1966]

I'm taking 150 mg of cyclophosphamide per day, 5 mg prednisone, sulfameth, omeprazole and calcium. My doctor want me stay on cycloph.. for another 3 months total 9 months.
Barb

[Sangye]

That's a long time for ctx, Barb. Usually they transition you onto a milder drug after 6 months. Did he say why he's keeping you on it that long? Is it a Wegs specialist?

[Jack]

Sounds like a lot of Ctx and not much Pred. Not the usual balance I would say, but if your doc is a specialist it might be what your particular case requires.
Anything more than 6 months on ctx needs a very good reson. You don't want to use up all your lifetime's allowance in one treatment in case you need it again in future.

[DEE]

im taking 150mg ctx and 22,5mg preds and have been on ctx 10mths with various doses of preds started tappering last week to 125mg ctx with22.5 preds
i have a cough but not sure wether due to tapper or still PE related wil know next thurs hopefully
DEE x

[jola57]

I was on cyclo 150 and pred 25 for 6 months the first time and right after 3 weeks after getting off cyclo I flared so badly that my doc put me on 12 months of cyclo and 60 pred. I am now, 2 years later, on 10 mtx and yahoo 5 pred. All seems to be good, just my anca is very high (after 200 they don't measure) so I think I am in remission, whatever that means, although nobody has said that word to me yet.

[Sangye]

Shhhh.... Jolanta is in remission!!! Nobody tell her body.

[elephant]

Jolanta sounds like your in remission. I think once we mentally think we are in remission and think positive will stay in remission. Positive thinking goes far.

[Sangye]

I totally agree with you, Elephant. I'm viewing my body as being on a new trajectory now-- healing, recovering, stable. The mind-body connection is extremely powerful.