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Thanks, Me2 for the excellent information. I had goopy eyes, as well, for 2 years before I was diagnosed with WG. I was started on Bactrim DS daily, and CellCept. Now that I think of it, my eyes cleared up without recurrence. Of COURSE it was the Bactrim.
Your information on the surgery is amazing. I'm sorry you had to endure so much. I hope you can be helped, Ian. Sounds like you really need for some kind of intervention.
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Thanks Lola,
Another member of the goopy eye club. ha. I am concerned for Ian too.
I was going to talk a little more about the surgery - the DCR I had. I think you picked up that it was quite traumatic for me, and it was. I think there are two reasons I had such a difficult experience.
First, the recovery nurse was really quite mean and insensitive to how much pain I was in and I had no one there to be my advocate.
Second, I had terrible neausea, I mean really Biblical (ha) - beyond description. This was from the aneasthetic.
Recently I had hernia repair surgery and I was frankly scared to have a repeat of my DCR experience. I told my doctor and the aneasthesiologist about my concerns and I was told that aneasthea had improved a lot since my last surgery AND that they would take good care of me after the surgery. Man, were they ever right. I had zero nausea and the nurse in recovery was VERY attentive and kind. AND she kept asking me how I felt, if I said it was hurting at all then I was given a little zap of pain killer. It was really a good experience. Plus I had a relative who is a nurse there as my advocate. (turns out she wasn't needed. still I would have here there again, you just never know) The pain killers were so effective I was sent home the same day.
So, I'm thinking that even if I get the DCR done again it would not be so bad as last time. I would go in expecting the same treatment as I recently got for hernia repair.
Also, strangly enough, the day after the DCR I felt zero pain and felt zero pain for my entire recovery after that. I don't know if that is normal but I take that memory with me too. I have heard stories from other people too about how much easier surgery is now days so it is very encouraging.
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