Negligence Case

[elephant]

Actually we really need a Care Plan in Place at the ER and Hospitals for Autoimmune diseases. We have care plans for COPD, kidney failure, congested heart failure,diabetes ....

[Sangye]

What do you mean by a Care Plan, Elephant?

[Doug]

Gwen- Wow! I'm sorry it came at considerable pain and discomfort to you, permanent scarring, but I am very happy you were able to establish a precedent in your country's laws, not to mention tangible changes in the medical care system of your country. In a way, you climbed Mt. Everest right along with our Cindy! Good for you! How will this affect laws related to this sort of issue within the EU? Will people in each country have to take cases to their respective high courts, or do precedents in any member country's courts have legal status within the rest of the countries in the EU? Anyway, good for you! Good for you!

[elephant]

If they had a Care Plan for WG- This is a made up one ...

1. Lab work to check CRP, ESR,ANCA, WBC, CMP, Creatinine...
2. CT of lungs if having increased Shortness of breath...
3. Check kidneys ( 24 hour urine/ blood work)
4. Head to Toe assessment.....
When I visit the ER the doctors are clueless and some of the primary doctors really don't know what to do....they seem lost..

[Sangye]

I've been lucky with hospital ER's. The local one in Flagstaff (AZ) was amazing. It was a regional trauma center. They knew exactly what to do when I came in for the first 2.5 yrs of Wegs. JHU ER has done a good job, too. Any of my ER docs routinely do everything on your list.

If your hospital doesn't, I think it's a great idea to push for a Care Plan.

Because my complications are so...complicated, even doing the routine things on the list doesn't yield straightforward answers a lot of the time. For example, I can have hemorrhaging lungs and my ESR and CRP are normal, pulse oxygen is 100%, lungs are clear, and hemoglobin/hematocrit are still within range.

[elephant]

I need to call the hospital and ask them, because they are "lost"! I could even suggest what they need or they will of course have to look into it. Once I have my surgery...I will ask the nurse's if they even heard of WG? Then I will go from there.
I am glad to hear Sangye, that your hospital is good at checking WG out.

[moyan]

Hi El, Langley memorial must be quite good also, 1 day, but then again I had 50% kidneyfailure in 3 months, was in for some odd feeling and losing it, and that must have helped. They knew it was very acute. Hopefully it made a red flag in the ER.

[Jack]

Crash a plane and they have an enquiry to see if lessons can be learned to prevent it from happening again. Crash a patient and they try to hush it up!

[elephant]

Jack, there is a hush policy...but once in a while you do stumble on a honest doctor.....We had a Surgeon who did a below the knew amputation on the wrong leg! The patient never sued him! Obviously the surgeon could not hide that one!

[Lightwarrior]

I am smiling inside and out. You have made me very proud, doing the right thing is not easy I admire your courage.