Methotrexate not working -

[JanW]

Sangye -- SS is pretty much my "thing" on this board, and because I have had my surgery done with such a reknowned specialist, I really consider it a "duty" to share what I know. I know so many Weggies end up with traches -- even with their airways more open than mine was at it worst -- and it doesn't have to be that way. I also know that SS doesn't follow disease progression -- so your mtx could be working, and yet your SS could be progressing. And it's a stubborn little bugger to fix, too. I just don't want anyone's SS to get as bad as mine got -- it was awful and I didn't even know it! And the recovery, at least from the way that my particular surgery was done, was so easy it was like a night in the spa for someone who is normally taking care of youngish kids!

[Sangye]

You go, girl. You're helping a lot of people, and more to come (unfortunately).

[elephant]

I always enjoy reading every one's comments. They are all so valuable and informative. We are all learning from each other and understanding the disease, this is better than a medical book and any other book. I feel by this summer....I will be a WG expert!

[Brooke]

I agree - so much great information from everyone, thanks so much.