Test results

[jola57]

Sangye, I know you think rtx may be better, but my regimen of ctx and mtx seems to work so far. I think both my rheumy and I think that don't fix if aint broke. We are keeping a watch on my liver and kidney functions since all else seems to be fine.

[elephant]

Jolanta your on cytoxan and methotrexate? Are you still on low dose of Prednisone? I am wondering if triple therapy is beneficial since I am doing the same thing.

[JanW]

I think that it's not a matter of ctx being better or worse than rtx, but it is fact that the RAVE study proved that rtx was both safe and effective in the treatment of WG -- just as effective as the more toxic cytoxin. So that part isn't in dispute unless further studies conclude otherwise.

[Sangye]

I think that it's not a matter of ctx being better or worse than rtx, but it is fact that the RAVE study proved that rtx was both safe and effective in the treatment of WG -- just as effective as the more toxic cytoxin. So that part isn't in dispute unless further studies conclude otherwise.

Yeah, that's what I meant!

I just want you to be as healthy as you can and satisfied with your treatment. Whether that's with ctx or rtx, I don't care.

[jola57]

I was on both and 15 pred for 3 months, now i am on 10mg mtx and as of yesterday 7mg pred

[elephant]

Jolanta, Is the methotrexate 10 going to be the maintenance dose? How are you feeling?

[Sangye]

What's a typical maintenance dose of mtx?

[elephant]

I'm guessing the maintenance dose is whatever they can tolerate without flares.

[jola57]

For now 10mg of mtx seems to work as a maintenance drug with 7mg pred. I should get my new results next week so I will see how my kidneys and liver are doing.

[Col 23]

Frustrating..However its good that your feeling okay. Sounds like you may have to wait on the bloods again to tell the story.
Im new to all this but I think if your still having breathing difficulties you might need to go back again. I remember at the beginning I had difficulty breathing with Wegs and my chest was all tight and painful however that was because the nodules were on the lungs and chest. Its still gets tight and I get breathless every now and then especially when Im tired. Sorry I couldnt be more helpful.
Col 23