anyone ever had "Nephritic Syndrome".....? ( kidneys)

[jola57]

Lightwarrior, the feeling you have has and is shared by all of us, at my most active weggs time I could walk half a room length befor stopping, to wipe a counter I had to change hands 20 times, I walked up my stairs to the bedroom on all fours and slid down on my bum like a yearold. I lifted tea kettle with both hands, Couldn't take baths only showers for fear of not being able to get out of the tub. I had red/pink eyes, pain in all muscles and joints. Need I go on? I felt like a a piece of meat going thru the grineder. But when I was finally put on the right dose of prednisone and cyclophosphamide, all the symptoms gradually diminished and were finaly gone (well mostly). It took time and I honestly did not think I would function normally again. Keep heart, you will get there.

[Sangye]

Lola-- thank you for posting the link to the BVAS. I've meant to do that for awhile. It's one of the main tools Wegs specialists use to guide their assessment and we Weggie can certainly use it ourselves. For those who are new to Wegs or would benefit by having a checklist, you can do the BVAS regularly (eg once a month) and bring them to your doc at each follow-up.

[Jack]

BVAS - Birmingham Vasculitis Activity Score.
A system developed at the hospital where I attend - I've met many of the doctors on the list of authors.

[Lightwarrior]

Lightwarrior, the feeling you have has and is shared by all of us, at my most active weggs time I could walk half a room length befor stopping, to wipe a counter I had to change hands 20 times, I walked up my stairs to the bedroom on all fours and slid down on my bum like a yearold. I lifted tea kettle with both hands, Couldn't take baths only showers for fear of not being able to get out of the tub. I had red/pink eyes, pain in all muscles and joints. Need I go on? I felt like a a piece of meat going thru the grineder. But when I was finally put on the right dose of prednisone and cyclophosphamide, all the symptoms gradually diminished and were finaly gone (well mostly). It took time and I honestly did not think I would function normally again. Keep heart, you will get there.

Thanks Jolanta, I needed that encourgament.