anyone ever had "Nephritic Syndrome".....? ( kidneys)

[elephant]

Moyan, I am not doing too bad. Can't wait to get my gallbladder out! I think I will feel better. Still have sinus issues, but not getting worse. Moyan, I too recently got a new Internal doctor, after my last doc told me people don't die from Gallbladder disease. My sister almost died ( her gallbladder was going to burst) and a family friend recently died of them same thing. So, that's when I decided it is time to find a different doctor.

[JanW]

I've got to get a new PCP too. Sangye did you get a recommendation from JHU, or just find someone on your own?

[Sangye]

Wow, that doctor was an idiot. If any organ abscesses or ruptures it can be fatal. Everyone knows that. Except for him...

[moyan]

WOW. Did you tell him? The scary part is, I would definitly have believed him! Raised when docs were made in heaven!

[Sangye]

Moyan, your comment reminded me of something I learned in chiropractic school. That was in 1995, so subtract a few years: Seniors grew up in the era of "Doctors Orders." They're accustomed to their doctors telling them what to do and don't expect explanations. Baby Boomers grew up with a "Question Authority" mentality. They demand explanations and for doctors to treat them like equals. Generation X-ers are much more like Seniors. They "rebel" against their Baby Boomer parents and are less likely to ask for lengthy explanations. They just want to know what to do.

Of course these are generalities. (Your results may vary) But I was struck by how accurate it was in practice. I explain everything to everyone regardless of age. The ones most interested in the details were usually the Boomers.

[moyan]

Thanks Sangye, that sure gives perspective . As you know, I have hardly ever needed a doc, so when this started I was 5 years old again This site with so much knowledge has put matters in place for me, but still some reminisents(phonetic)

[elephant]

No I did not tell the doctor, I was so furious...I almost blew my granuloma's! This was suppose to be a good doctor....but I think this doctor has issue's.....I think this particular doctor is burnt out and not interested in being a doctor. I live in a small town so I kinda know what's going on....so at that time is was best to keep my mouth shut and move on. Usually I have no problem telling a doctor how I feel, but I couldn't on this one.....

[Sangye]

I understand the small town thing. Glad you knew better than him... and didn't bust your granulomas.

Jan, all my docs except for dermatologist and PCP are at JHU. The dermy is awesome--no need to go to JHU. He also doesn't need to communicate with my docs there. Straightforward.

I didn't want a PCP at JHU because I live 1.5-2 hrs away. I was going to a local JHU outpatient clinic of PCPs but they were totally disorganized and I never saw the same doc. I kept asking friends for recommendations. I don't think it's necessary to have a PCP who knows Wegs (good luck finding one!), just someone who's willing to work with your team and who really listens to you. My PCP asks me what I think is needed when I have a problem-- eg blood work, antibiotics. She respects how much I know about Wegs and how it behaves in my body.

[Jack]

My PCP (we use the term GP) is pleasant and willing to discuss symptoms and treatment at length, but more importantly he does what I ask. He knows little about Wegener's, but that does not matter.

[moyan]

I bet he knows quite a bit by now