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I don't know what that is-- maybe a sub-type of T cells?
I don't know what that is-- maybe a sub-type of T cells?
Yeay Sangye, great - wow. Soon you will be running around with your pups
Jolanta
Yesterday on Twitter a guy posted pics of a hiking trail he was on in Colorado. It's been 5.5 years since I was able to hike (I can't even walk my dogs for 10 min yet). I just burst into tears looking at the pics. I used to hike many miles in the mountains every single day. I'd get up early and get out in the woods without even eating breakfast. I've always been a morning person--just woke up with energy and ready to go. Because of the incredible beauty of the land in northern Arizona, I do remember being very grateful every single day for living in such a place. But being so healthy and strong my whole life, I wasn't truly grateful for everything-- being able to get up without pain and with energy, being able to wear hiking boots (and squatting down to tie them), being able to deal with dog leashes and a camelpack of water, never wondering what shape I'd be in when I was finished..... I never thought, "Wow, I'm so blessed to have strong legs or good lungs." Maybe sometimes, but not nearly like what I'd be thinking now.
Add to that a year and half of living in a basement in a densely-populated suburb, and those pictures really got to me.
Awww, Sangye, hugs to you.
I know it is probably of little comfort, but at least now you are starting to get better, and I know that you have changed lives just being on this site, something you should be very proud of.
Its hard when we look back, I think of all the things I took for granted and now I just feel grateful if I can get up and participate in some
way for the day. My doc has advised that Im too hard on myself and to go at 10%. Whatever happened to the other 90.
cheers Col 23
Hugs to all of you! I understand..and think about how lucky I am to be alive today....I think about I can eat, breath and walk today. Believe me there were days I could not hardly do any of that!
I've been having a hard time for the past 3 days. I think I dropped to 0.5 mg pred too fast. I only stayed at 0.75 mg pred for 2 days and then dropped it to 0.5mg. I was doing great until the first day at 0.5 mg. That afternoon I developed extreme, sudden sleepiness in the afternoon-- like I'd had anaesthestic. The next day (yesterday) I felt suddenly depressed about 2 hrs after taking the pred, and in the afternoon I got the same sudden sleepiness. My legs and feet are achy, too--when I've been sitting a few minutes and try to walk, they really hurt. I feel lousy.
Today I took 0.75mg again but it might take another day at that dose to feel better. I'm not as sleepy this afternoon but I do feel depressed. (Some of that is because I was just starting to feel better and now I feel like poop again.) I'm really glad I keep my daily log of AM/PM symptoms as I taper. It's very obvious to see the connection between how I'm feeling and the pred dose, and if it were up to my memory, I wouldn't have a clue.
I'm really hoping that's all it is. Stupid Wegener's.
That is great that you log in everything. Sangye just give it a couple of days. I had a feeling you weren't feeling well yesterday. Better day tomorrow.
Thanks, Elephant. I guess I was thinking at such a low dose my body wouldn't notice. Silly me.... I bet I'll even notice going from 0.25mg to zero.
That sleepiness is like anaesthestic, thanks for describing how you feel tapering as it makes me more aware of whats happening to me.
Remember what you said about tiptoeing out the door. Slowly does it. Its like that game of snakes and ladders.
Col
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