I just got a phone call from Dr. Villa-Forte. She has reviewed my files and the recent CT scan of my lungs and has confirmed the diagnosis of GPA. My local rheumatologist called it "Limited Wegener's". Dr. Villa-Forte prefers the term "mild GPA". To me that's six of one, half a dozen of the other.
She is prescribing 30 mg Prednisone, infusions of Rituximab and a liquid antibiotic (I'm allergic to the sulfa in Bactrim).
The next step is to get my local rheumatologist to work with Dr. Villa-Forte. After a year and a half, I hope to start getting better.
I'm hopping on the train !!!!!!! Next stop......wellness?