How to know when you're having a flare

[DEE]

Sangye i to have had problems with wound dressings and after surgery on to occassions had more problems with dressing site than operation site
at the moment cant let them put tape over cottonwool site after taking bloods because if they do within minutes when i take it off i have start of a rash and sometimes blisters
this happens with varios tapes and dressings DEEx

[Natalie]

I really went through the mill with the leg ulcers. All my docs were undecided and totally lost. They rarely see vasculitic ulcers and have little in the way of treatment options. They constantly want to do things that work for diabetic ulcers, which are a very different mechanism and not painful. I can't even describe the pain I was in. I was also allergic to anything sticky and had a hard time with wound dressings. The whole things was a huge nightmare.

Im arrergic to micropore Tape and a few others too so my boob looks a bit worse for ware atm .

[Natalie]

Sangye i to have had problems with wound dressings and after surgery on to occassions had more problems with dressing site than operation site
at the moment cant let them put tape over cottonwool site after taking bloods because if they do within minutes when i take it off i have start of a rash and sometimes blisters
this happens with varios tapes and dressings DEEx

Hi Dee, yes those tapes can be a buggar , I often forget to tell the Pathology nurses That Im allergic before they sick it on me
.

[Sangye]

Natalie, does your wound area look "angry?" That's actually how docs describe inflammation-- red, hot, swollen. I'm asking for a reason--no time to explain right now, but I will later.

[Col 23]

Hi Natalie
I had lots of lumps in my breasts before diaganoses which they thought was breast cancer initially and it was Wegeners. Once on 80mg pred and 25 of methotrexate they went away and have not returned. So yes you do know someone. If they hadnt diagnosed Wegs I wouldnt still have them. Lucky.
Hope your still feeling fine and its all healing.
cheers Col 23

[Natalie]

sorry for the late reply have been run off my feet this week with my Family . ok It did look angry but once I was put on this hight dose of clyndamicin it has settled down , and just looks like superfical wound I havent seen it for 5 days as this is how long they are leaving the dressing on now . Silver base dressings they are using now , im off to doc now 9:30 .. to get a review . I see specialist first then to my local doc to change dressing . I wanted it this way around so that My specialist could see what it looks like after 5 days not being touched . i hope it looks good , I havnt had to much pain in it , just a little bit . ok I must go will fill yous in when i get home tonight .

[Natalie]

Hi Natalie
I had lots of lumps in my breasts before diaganoses which they thought was breast cancer initially and it was Wegeners. Once on 80mg pred and 25 of methotrexate they went away and have not returned. So yes you do know someone. If they hadnt diagnosed Wegs I wouldnt still have them. Lucky.
Hope your still feeling fine and its all healing.
cheers Col 23

thank you Col for shareing this with me , I was told when I was 17 that I have very lumpy breasts ?? A link perhaps ? somethink to think about any way

[Sangye]

Natalie-- it sounds like your wound is healing very well. That's awesome!

[elephant]

Natalie so glad to hear you are feeling less pain. Moving in the right direction.

[Natalie]

BOO hooo not good doc visit today so much for wishfull thinking. C-ANCA has doubled since I seen him last which was 4 weeks ago , boob still breaking down in parts and no better . Doc Is now going to get a Biopsy Of the wound he did look a bit puzzled today . As much as we want it to be better its not .
I have A few questions to throw around on the subject If any one can answer would be much apreciated .
if this Biopsy comes back with active wegs how would the wound be addessed then ? I can remember reading someone writing that if it is vasculitis related it will be much harder to treat.
I am currently on 5mg of pred and 3000mg of cellcept daily i have been on these doses for quite awhile with no flares
My sp ecialist Is a renal Doctor who looks after my meds and blood tests .. will I need the help of another specialist to deal with this wound if so who . ?? ok that will doi for now .