sinus surgery question

[Sangye]

Why is the sinus culture taking so long? It's usually just a few days. Have you called to check on it?

[makabe]

I've called several times and even asked the lab directly. They say only the doctor can give me the results, which seems wrong but no one will budge on it. The doctor is now on a medical mission and I have a feeling his stuff is taking way longer to get to since another doctor probably has to add my docs calls/questions to his/her pile. Since I used a big lab, I'm calling my regular doctor on Monday to have them pull the results and figure out the drugs.

[Al]

I've called several times and even asked the lab directly. They say only the doctor can give me the results, which seems wrong but no one will budge on it. The doctor is now on a medical mission and I have a feeling his stuff is taking way longer to get to since another doctor probably has to add my docs calls/questions to his/her pile. Since I used a big lab, I'm calling my regular doctor on Monday to have them pull the results and figure out the drugs.

Hold it a second Karen. Let me get this straight: You (or you through the insurance company) are paying for the culture, yet everyone is just sitting on the results? My goodness, what is this world coming to? And it isn't even yet the ides of January. ("You blocks, you stones, you worse than senseless things!")

Al

[annekat]

I'm interested in the variations on normal temps. I run low myself: 97.0 F is standard for me; 98.1 would be a mild fever. Anyone else?

Al

That's interesting, I also have my temp usually around 97.0, sometimes a little more, but rarely up to 98 or above. I started taking my temp during the lung involvement last winter, before I knew I had WG. I've had a fever maybe 3 or 4 times during that period and since.

Anne

[Al]

That's interesting, I also have my temp usually around 97.0, sometimes a little more, but rarely up to 98 or above. I started taking my temp during the lung involvement last winter, before I knew I had WG. I've had a fever maybe 3 or 4 times during that period and since.

How high were your fever temps, Anne?

Al

[Palmyra]

Hi there makeabe,

I can tell you that in my daughter's experience, septal collapse was not a result of watchful waiting. She has had 6+ successful debridements in the last 18 months, with many warnings from Mayo specialists to local plastic surgeons NOT to mess with a deviated septum in active or non-acitve Weg.

The medications used to subdue active Weg cause many Rhino viruses and much worse (fungal and bacterial infections), but I would highly recommend many opinions before allowing surgery to correct a deviated septum (which most of us have..its an easy procedure for those that are not at risk) the nasal septum has lousy blood supply to begin with....the risk of septal collapse is too great and too difficult to repair for those with Weg and a compromised blood and immune system.

Best Wishes,
Mom Jane

[annekat]

How high were your fever temps, Anne?

Al

When I was sure I had a fever was when it got up to around 100. That was only 2 or 3 times, back during the lung involvement when I thought I had pneumonia, which turned out to be WG. But there've also been a couple of times it's gotten up around the "normal" of 98.6, when like you, I considered that I might have a bit of a fever, since it's usually in the 97 range.

Anne

[Al]

When I was sure I had a fever was when it got up to around 100. That was only 2 or 3 times, back during the lung involvement when I thought I had pneumonia, which turned out to be WG. But there've also been a couple of times it's gotten up around the "normal" of 98.6, when like you, I considered that I might have a bit of a fever, since it's usually in the 97 range.

I find this interesting, Anne. Not necessarily important, but interesting. I wonder how many of us run low, body-temp-wise?

Al

[vdub]

You (or you through the insurance company) are paying for the culture, yet everyone is just sitting on the results? My goodness, what is this world coming to? And it isn't even yet the ides of January. ("You blocks, you stones, you worse than senseless things!")

This is more typical than not. My experience from having blood tests every month for the past 19 months at random places all over the western US, is that most will not release the results directly to you as a matter of policy (not law). I carry a "letter for release" from one of my doctors and that usually does the trick.

But, back on subject. I was active wegs, but didn't know it, and had sinus surgery to open the air passages to my sinuses. It was the best surgery I have had! Whenever I notice myself breathing through my nose, I am thankful I had the surgery. But, that is just my experience -- everyone is different.