What kind of eye issues should I worry about

[Nancy-S]

I guess that's a silly question. When would I not worry? Anyway...

About six weeks ago it seemingly came on overnight. My eyes were okay (except for intermittent) blurred vision. I got a sandpaper type feeling at night. When I saw the eye doc, he was quick to tell me this did NOT happen overnight. He was very quick to tell me about all his knowledge of wgs although he kept calling it cellulitis. I didn't pay much attention to his "knowledge". He was certain vasculitis has nothing to do with my eye issues. He looked at me and said the cause is "old age and living in the dessert". Okay... if you say so. He gave me eye drops that do not help.

Since that day, two weeks ago, my eyes have become worse. They give out on me about an hour before bed. I can't read, or see very well. They burn, and feel like sandpaper. Currently, they are worse is in the morning. I wake up and can't see well for about an hour. They are crusted shut, so I have to clean them thoroughly with warm water. As the day progresses, my vision improves. I read his diagnosis, and it's keratoconjunctivitis. I think it's important to remember, prior to about 6 weeks ago, I NEVER HAD AN ISSUE. Yes, I'm getting older. Yes, I live in the dessert. I've been here for twenty years.

I think it's related. I wonder if anyone else here has a similar issue and what do you do about it?

[Al]

I guess that's a silly question. When would I not worry? Anyway....I wonder if anyone else here has a similar issue and what do you do about it?

Which doctor was it, Nancy? The opthamologist? He should know better. Sounds to me that he has been in the desert a little too long himself. There is a very strong probability that it is the wegs dog growling fiercely. Conjunctivitis is, in fact, a well-known symptom of vasculitis of the WG kind.

Al

[Nancy-S]

Yes, it was the opthamologist. He disappointed me, so so much. It makes me sad. But he is no longer my problem.

Thanks for you insight Al, you should write a book. I would stand in line to buy it.

[Nancy-S]

Geesh.. I misspelled dessert, TWICE. I need a nap.

[Al]

Geesh.. I misspelled dessert, TWICE. I need a nap.

Freud says there are no accidents, Nancy. How long since you've eaten? Is the pred talkin' to you...?

Al

[Nancy-S]

Oohhh...excellent point. I am very hungry. No energy to prepare food. I kinda wish I had pred hunger, that would mean I'm getting treatment.

[Al]

Oohhh...excellent point. I am very hungry. No energy to prepare food. I kinda wish I had pred hunger, that would mean I'm getting treatment.

The pred can wait, Nancy. Eat now....

Al

[Nancy-S]

Done. Sure could use dessert.

[Al]

Done. Sure could use dessert.

Go for it, Desert Queen. You deserve it!

Al

[Sangye]

My two cents: Wegs can do anything it wants as quickly as it wants. I developed massive numbers of blood clots at once after 3 days of being on the highest possible dose of pred (1,500 mg). That "can't happen." The Wegs dog is smarter than your eye doctor.