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Thread: The VCRC Vasculitis Illness Perception (VIP) Study

  1. 11-22-2011, 10:55 AM #1
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    Default The VCRC Vasculitis Illness Perception (VIP) Study

    Hopefully everyone will register with the Vasculitis Clinical Research Consortium (VCRC). I got an email from them today with a study being conducted via internet survey. It's all about how people with vasculitis perceive their illnesses. It only takes a few minutes to complete.

    Here's the info page on it, with info on how to participate.
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  2. 11-22-2011, 01:12 PM #2
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    Quote Originally Posted by Sangye View Post
    Hopefully everyone will register with the Vasculitis Clinical Research Consortium (VCRC). I got an email from them today with a study being conducted via internet survey. It's all about how people with vasculitis perceive their illnesses. It only takes a few minutes to complete.

    Here's the info page on it, with info on how to participate.
    I got the invite and it took me to this page too but I don't see a link for taking the survey. They said they fixed it so us old guys can do it too as they didn't intentionally exclude us, just a programming error.
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  3. 11-22-2011, 01:16 PM #3
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    The link is in the email they sent you. There's one that takes you to the information page, and another that takes you to the survey. I didn't see it at first, either.
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  4. 11-23-2011, 02:50 PM #4
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    I got my email yesterday and will definitely register.
    Jolanta
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  5. 11-23-2011, 09:47 PM #5
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    The link was hard to find, I went to another message and when I went back it appeared in the blue as a link. It still took me a couple of times to get into it. Yes, I am old also, I wonder if it was part of the test?
    Dale
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  6. 11-24-2011, 02:19 AM #6
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    LOL Dale.
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  7. 11-24-2011, 02:43 AM #7
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    Got in finally...registered, got my email link, reregistered, not sure what I'm gonna get out of it, but it's on my resource list now. Thanks Sangye!
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  8. 11-24-2011, 11:05 AM #8
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    I found the right link and got in to where I could update or edit my info, but when I wanted to take the survey it said it had no record of me, so I guess my edited profile was a figment of my imagination or a dream I had while sleep surfing on the internet.
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  9. 11-24-2011, 12:04 PM #9
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    I registered a month ago but never got an email about taking a survey and didn't see a link on the website to take the survey.
    I my have Wegener's Granulomatosis and that I can't change. What I can change is how I choose to deal with it.
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  10. 11-25-2011, 11:29 AM #10
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    It said that 2000 people are to take the survey so maybe not everyone was given one
    Jolanta
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