You can't see them so much as feel them. Have you experienced this?
David
You can't see them so much as feel them. Have you experienced this?
David
That is weird, have you been under alot of stress, besides dealing with Wegeners? I could be a sign of a rare flare of WG too? Ask your Rhuemy.
I've mentioned it to my docs. They didn't say anything really. You think Weg's-related, but maybe it's not...
I've gotten that since being on rtx. Mine feel like bad splinters or like a glass splinter. Every so often they show up as a red lesion but otherwise they're invisible. They're surprisingly painful even when totally invisible. Sometimes the first sign that one is starting is sudden, severe, lancing pain-- as if my fingertip were cut deeply with a knife. I believe them to be Wegs lesions but as long as they don't progress I don't worry about them. Dr Seo has made note of them but doesn't say much.
I've had Wegs skin lesions that turned into ulcers. These fingertip lesions feel the way the skin lesions did before they erupted into ulcers.
I've had tiny blisters on my fingers for several years.
That was BEFORE I was diagnosed with Wegener's.
Since I've been succesfully treated for Wegener's (I'm in a non-medicated remission now)
the blisters have disappeared.
I sure hope they never come back.
Doctors (dermatologists as well as Wegener's specialists) never knew what to with that symptom, however.
I've had this as well at times pre-diagnosis. I'd have never even tied it together if not for this post. I just assumed I'd gotten some fiberglass or something on my fingers.
~ Bob
Yup, that's exactly what I thought when it began, even though I wasn't aware of handling fiberglass. Then it spread to different fingers. It disappeared for a bit last year but then came back a few weeks after rtx.
We still don't have any idea of what made our bodies feel like we were handling fiberglass but I guess now we can assume that it is probably another one of those strange mysterious symptoms of GPA that is not well known or talked about. Wonder if it from the GPA itself or the drugs we took for treatment?
I have had this also on and off for years. It is common with Lupus and they call it "splinter hemorrhage". On me they don't always bleed and sometimes I can't even see them. Another way vasculitis affects your fingers is little red lines under your nails - this is the same thing. Lovely little added bonuses.