Page 1 of 3 123 LastLast
Results 1 to 10 of 27

Thread: Alternative Treatments?

  1. #1
    Pmarsh is offline Registered User
    Join Date
    Apr 2011
    Location
    North Vancouver, BC
    Posts
    25

    Default Alternative Treatments?

    Just wondering if anyone has benefited from alternative medical treatments like seeing a Naturopathic Doctor or getting Acupuncture? I am thinking about trying Acupuncture. The Dr I may see says she has a lot of experience treating patients will various auto-immune diseases. Worth a shot? What other types of treatments have you tried? I also go for massage, but it's more of a feel good thing for loosening up sore muscles from physical activity.

    Cheers.

  2. #2
    norcalian's Avatar
    norcalian is offline Registered User
    Join Date
    May 2011
    Location
    Oakland California
    Posts
    130

    Default

    I'm a fan of accupuncture. I haven't been yet for my Wegs...but that's basically because I don't go much of anywhere these days. But I've seen one for other stuff with a lot of good success. Once my drugs have been adequately tapered I'll go to a guy I see here in Oakland. If you end up going to one, let me know how it works with your Wegs.

  3. #3
    Sangye's Avatar
    Sangye is offline Registered User
    Join Date
    Nov 2008
    Location
    Maryland, USA
    Posts
    10,128

    Default

    Quote Originally Posted by Pmarsh View Post
    The Dr I may see says she has a lot of experience treating patients will various auto-immune diseases. Worth a shot?
    You can use holistic medicine to a degree but you need to be very careful. Here are a couple of threads with my suggestions and explanations (look for my posts):
    My Roommate and I!

    Natural or Homeopathic Remedies?

  4. #4
    Thakator is offline Registered User
    Join Date
    Nov 2010
    Location
    Kentucky
    Posts
    126

    Default

    Also, be careful with massage. No deep masssage for those on chemo.

  5. #5
    vdub's Avatar
    vdub is offline Assistant Admin
    Join Date
    Nov 2010
    Location
    Tiny town (even smaller than Swift Current) in Southeast Washington State
    Posts
    723

    Default

    I think I'd listen to Sangye on this one..... Be very, very careful.....
    Dx'ed Apr 2010 by PCP. Dx confirmed Feb 2011 by University of Utah Vasculitis Center. My Story E-mail: vdub at wegeners-gpa.com

  6. #6
    Jack's Avatar
    Jack is offline Registered User
    Join Date
    Sep 2008
    Location
    Birmingham, England
    Posts
    2,801

    Default

    I think you are going to get a similar reaction from most on the Forum. Alternative treatments are a subject that has come up many times over the years, but I've yet to hear much in the way of success. However, we all know how finely balanced our current drug regimens are and know how quickly things can go horribly and even permanently wrong.
    Jack

  7. #7
    JanW is offline Registered User
    Join Date
    Jan 2010
    Location
    Hoboken, NJ
    Posts
    1,409

    Default

    What Jack and Sangye said. You aren't going to see too much talk about alternative treatments as being a substitute for standard medicine for wegs, and since our conditions are often so precarious (even when healthy), you have to ask yourself with the benefits outweigh the risks. I haven't gotten so much as a massage since I have been on mtx. I did get accupuncture because of my problems with my ankle. It didn't help, but mtx certainly did.

  8. #8
    drz's Avatar
    drz
    drz is offline Registered User
    Join Date
    Jul 2010
    Posts
    1,574

    Default

    Quote Originally Posted by Thakator View Post
    Also, be careful with massage. No deep masssage for those on chemo.
    I used to really like a good massage and got several before my diagnosis. They seemed to help me feel better for an hour or two but did nothing to help the joint pain from the Wegs.

    What are the risks from a massage? I have not got any since my diagnosis.

  9. #9
    pberggren1's Avatar
    pberggren1 is offline Phil Berggren, dx 2003
    Join Date
    Mar 2009
    Location
    Swift Current, Saskatchewan, Canada
    Posts
    3,976

    Default

    Quote Originally Posted by drz View Post
    I used to really like a good massage and got several before my diagnosis. They seemed to help me feel better for an hour or two but did nothing to help the joint pain from the Wegs.

    What are the risks from a massage? I have not got any since my diagnosis.
    I think the risks from a deep tissue massage are that it can release the toxic ctx or other chemo that has built up over time in our muscles. If it is released it can wreak havoc on our body and possibly kill us.
    Phil Berggren, dx 2003

  10. #10
    Pmarsh is offline Registered User
    Join Date
    Apr 2011
    Location
    North Vancouver, BC
    Posts
    25

    Default

    I'm certainly not looking at alternative treatments to replace typical treatments, just compliment them. From what I've read there is no real reason for someone on Chemo to avoid massage. The only risks are greater likelihood of bruising with deeper massages, and of course the risk of infection if you have cuts or scraps and there is poor hygiene at the clinic you go to. I will certainly be cautious about what I do - knowing that the goal is still immuno-suppression - but I'm also curious about whether anyone has found any alternative treatments to be beneficial.

Page 1 of 3 123 LastLast

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •