update on Lisa Marie

[LisaMarie]

ok...i just got my packet from my second visit to Mayo...I go back in August...I am in the R....but have to stay on 10 of pred and must take RTX as soon as my B cells return...my IGg is sloway returning but still below normal...Since it has effected my bronchioles....Dr Specks does not want the beaat to wake up....so even if I will never be who I was over a year ago i can adjust to this...when i take RTX this timtom of a lake somewhere....i will remain on prophlaytic bactrim ds and acyclovir daily for a long while...lasix and potassuim...calcuim with d and a prenatal vitamin along with my nexuim,zantac and clonazapam....hope everyone else is well...i am allowed to excerise now...starting slow ...like a turtle

[LisaMarie]

i meant i hope the mack truck remains at the bottom of a lake while i take the RTX...lol...one day i will type right...pray the beast stays sleeping

[pberggren1]

I hope the rtx works out for you Lisa. Did Dr. Specks say if he knew how long before your b cells start to return again?

[Psyborg]

Sounds like good news Lisa. I hope things continue to improve for you.

[elephant]

Hang in there Lisa, take the exercise program real slow. I had to start from rock bottom, but it was worth it.

[LisaMarie]

Phil,
I have to have them checked each month...he expects them to return any time..so I have to be careful.
I am starting 2 days a week for 30minutes...my goal is target heart rate of 130 and to build up to 5 days a week by December....so i will take it slow...i am only allowed walking,swimming,and bike riding.....light weights or bands...so maybe by christmas i will shed some of this weight....i would love to be drug free but it does not seem to be in my future so i will take what i can get......gotta

[vdub]

I will never be who I was over a year ago

Isn't that a bummer?! I think we are all in that situation. I try not to think about.

I don't think I could do much exercise. My arm and shoulder muscles/joints hurt too much. Knees and calves hurt, too, but walking is one thing I can do. I always preferred running to walking and for years I ran 6 to 8 miles a day. I have garbage bags full of race and marathon t-shirts. I actually kind of enjoy walking now.... Good thing, too, because running is definitely not ever going to happen again....

You hang in there and I hope everything goes well with your exercise program....

[LisaMarie]

Ok Guys...sent my blood off to Mayo to see if my B cells have returned...if so it will be rituxan again....I am hoping they are still gone ..I really want to enjoy the 4th of july with my family...we are finally geeting the pool opened...yeah....still running temp under 101...so atleast I am holding steady...Hopefully Sangye has found a home for the mack truck so it will not come out and visit any of us ...have a great day yall

[Sangye]

I hope you get to enjoy the holiday, Lisa Marie. The Mack truck is still parked on top of me so you need not worry.

[LisaMarie]

Sangye,
We neeed to find a lake to park it in...or maybe all the flooding around me can wash it away to parts unknown...hoping it leaves you soon.....I do have a question can WG cause gout like symptoms...one of my toes is swollen...but not red or bruised ...i can not bend it and it hurts like h*** ....so either I hit it and do nor remember or it is just anothe one of my wierd things......should know by the end of the week what my b cells are........Hope you get to feeling better soon