Official Name Change

[LisaMarie]

At Mayo and just found out WG has an official new name....will fill you all when i get back to the ho

[LisaMarie]

granulomatosis Polyangiitis....something something...dang old pred brain....they will be changing ICD codes too.....Dr Wegener's was some how connected to nazi war crimes so they are changing the name.

[pberggren1]

I'm still a Weggie.

[Sangye]

LisaMarie, you need to check in here more often. We've been talking about that name for a few weeks! Granulomatosis with Polyangiitis (GPA). Most of us think it stinks.

It is interesting that they're gonna change the ICD codes, though. That also stinks. Now doctors will really be lost.

[delorisdoe]

I deal with alot of residents and I dont care what you call it...new doctors are always lost with wegners.

[LisaMarie]

LisaMarie, you need to check in here more often. We've been talking about that name for a few weeks! Granulomatosis with Polyangiitis (GPA). Most of us think it stinks.

It is interesting that they're gonna change the ICD codes, though. That also stinks. Now doctors will really be lost.

i know yall have been talking about but per Dr Specks it has official changed and they are rolling out new ICD 9 CODES....so watch your billing....haven't been on much...had a black sewer flood in my finished basement...putting in a french drain to avoid rain and snow water from flooding the basement...hotwayer heater is leaking...and action broke...so it has been rough at the house before i came to mayo...they had an air scrubber in the basement for a week to get rid of all the bacteria and mold spores....busy last 2 days at Mayo and will be busy today....repeating an echo Today and possible repeat bronchoscopy on Monday...will find out if i need Rtx now ...will have to stay on 10mg of pred ...will update u all later...have a good day

[Palmyra]

Hi Lisa Marie,
I hope you get good test results and you don't have to stick around Mayo too very long. Please tell Dr Specks that his adoring fans from Texas (young Alison, with the Chilean hubby,) wish him well. Glad you are not at home while all those mold spores go away....
Best wishes.

[Daggar]

i know yall have been talking about but per Dr Specks it has official changed and they are rolling out new ICD 9 CODES....so watch your billing....haven't been on much...had a black sewer flood in my finished basement...putting in a french drain to avoid rain and snow water from flooding the basement...hotwayer heater is leaking...and action broke...so it has been rough at the house before i came to mayo...they had an air scrubber in the basement for a week to get rid of all the bacteria and mold spores....busy last 2 days at Mayo and will be busy today....repeating an echo Today and possible repeat bronchoscopy on Monday...will find out if i need Rtx now ...will have to stay on 10mg of pred ...will update u all later...have a good day

Off-topic but how did the french drain work go? Was it fairly disruptive? We live in an area where the ground water levels are high and the sump is always running - I've always been interested in the french drain method but never checked into the cost.

[Sangye]

Oh, bummer about the flooding but glad you're not there while it's being repaired!

[LisaMarie]

Okay labs, CXR, PFT's and Echo done...now I go see Dr Specks at 1630.....to find out what I have to do on Monday....if my B cells are back ....they will schedule Rituxan back home not sure if it will be once a week times 4 or every 14 days x's 2...Dr Specks will manage me and my PCP, Pulmonary doc and ID doc and Otolarynologist will also work with him ...not sure how often I will have to come up to Mayo yet...should know more today after I see Dr Specks....
..ok the flood clean up occurred while i was home but while I was at work....and unfornately the repair has not started cause we are waiting on insurance ....but i will either be working or stay at my sister in laws while the flooring and dry wall are replaced..going for tile floors.....
...the french drain in fairly simple but labor intensive....we had a french drain , the land graded and a new side walk for $7000.00....but with the french drain we had clean out sites for the gutters...screens for the gutters and a water saving tank place under ground that we came water the garden...if we ever get it planted...lol...the french drain drawn the water away from the house by a path of least resistance....the equipment to rent cost over $1000.00 to get the job done....but if you just do the drain and don't need the grading or a new sidewalk then it should be about $4000.00 or less in Missouri.....My parents did it on there house up in trenton mo and it was over 100 years old and it helped alot so it may be looking into and if you have a few friends you may be able to do it yourself if you get the proper plans.....anything to keep a basement dry and microb free is a good idea......
I will tell Dr Specks that Texas says Hello and will put your name in my phone so i do not forget
will keep ya all posted.....