Low Body Temperature

[Sangye]

For the past several days I've been freezing cold no matter what I do or how many layers of blankets I get under. My fingers and toes often turn blue when I'm cold (and sometimes when I'm not). They've been solid blue for days, only going to a normal color if they're in hot water or I'm moving around a lot. As soon as that's over they're blue again. It's not at all cold here lately--nothing else is different.

I just took my temperature-- 97.0 F (36.0 C). I usually run low, but that's ridiculous! No wonder I'm freezing. I don't think there's anything to do about it at the moment, but if it continues I'll let Dr Seo know next week.

Meanwhile I'm going to go put more clothes on.

[vdub]

Definitely sounds strange... No other symptoms -- other than normal wg stuff? Thyroid?

[Sangye]

We keep testing my thyroid and it's within medical normal range. From a holistic point of view it's not in range and suggests a problem with the anterior pituitary. (Not to the extent of yours, vdub) Anterior pituitary hypo-function looks and acts like thyroid hypo-function but the thyroid tests will be normal. That's what I have. I see an endocrinologist in the beginning of July and hope she can figure it out. Holistically we know what to do but the drugs I'm on complicate that.

[vdub]

anterior pituitary. (Not to the extent of yours

Yeah, mine's in the landfill somewhere, so it's somebody else's problem now....

Sure hope you can get something figured out.

[Sangye]

LOL I think yours is somebody else's dinner! (Eww....)

[elephant]

That is weird you have been cold. Any underlying infection? Flu? Virus? Did you decreae your pred?

[ScreaminMeanie]

I've got that going on, too. Not quite as extreme as yours, but I'll be freezing cold and be convinced I have a fever. Take my temp, and it's between 97.2 and 97.9. The only time I'm not cold is when I'm a) having a hot flash, or b) trying to sleep. Then I'm waaaaaaaay too hot.

Everyone else in my office is wearing short sleeves and I've got on a long sleeved shirt and a fleece jacket, zipped all the way up. It's not the RTX, since this has been going on since long before I started that. I wonder if it could be generalized vasculitis slowing down the body's blood circulation?

[Sangye]

Ever since I got sick my temp runs about 97.6.

I suspect this latest stuff is due to the Wegs dogs nipping at my heels. The other evening I was sitting here and just felt so lousy, like how you feel when a flu hits. It's kicking in quickly. Those 2 rtx infusions in February really did not do anything for me! I start the next round of 4 infusions next Tuesday.

[Sangye]

Elephant, I haven't dropped the pred dose from 2.5mg-- Wegs is too active and I'm already wiped out and in pain.

[elephant]

Glad you are getting it done tueday. That is weird about being cold. I never got that unless I was really sick. Which makes sense.