How many years have you lived with Wegners?

[maria garcia]

How many years have you lived with Wegners and did they start you on medication right away?

[pberggren1]

I have had it since late February of 2003 and was diagnosed in late April of the same year and started meds right away.

[mishb]

I have had symptoms since 2009. Diagnosed Sept 2010, nasal biopsy confirmation Feb 2011, started meds April 2011. Better late than never

Michelle

[manalolana]

Officially diagnosed in April 2010 at the Mayo clinic with biopsy slides that I brought up from a year ago. Once confirmed, they started me out on MTX right away.

[delorisdoe]

First big flare 1999, diagnosis 2001. 10 years.

[Jack]

26 years.
Medication started on day one of diagnosis.

[Elena]

Symptoms from late January 2009, diagnosed late April 2009. Started meds right away. So almost accurately 2 years.

[ArlaMo]

Symptoms started in Oct of 2009, diagnosed in April of 2010 and started on meds right away.

[JanW]

Symptoms started in 2005, misdiagnosed for five years, loss of mobility due to severe bilateral foot pain led to diagnosis in January 2010. Started on medication after surgery for subglottic stenosis in March 2010. Medicated Remission since early fall 2010, currently trying to reduce meds in hopes of going med free.

I should add that I was not sick from 2005, although increasingly out of breath (subglottic stenosis). Suffered saddle nose in summer 2009 (probably flare).

[renidrag]

I had symptoms for two years before August 09 diagnosis. Started medication same day. Drug free remission June 2010. I am on Warfarin for clotting with a filter in vena cava. Had an embolism in December 09.