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About LinkBacksOk guys...got my packet from Mayo from my visit in February ...will read thru it then let you all know what is going on
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Got my Packet from Mayo
Ok guys...got my packet from Mayo from my visit in February ...will read thru it then let you all know what is going on
Want to see a miracle? Plant a word of love heartdeep in a person's life. Nuture it with a smile and a prayer and watch what happens...Never underestimate the power of the seed!
My mojo for today.....gonna be johnny apple seed and just keep planting
Lisa Marie
The happiness of people is not necessarily to have the best of everything...but make the most of what you have!!
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Ok...I think I may understand it all now...I have a nasal polyp they will most likely biopsy in May ...I may have another bronch done....I will need to complete a timeline because there is wrong info in their data and i want it corrected...as it alos may help them see the whole picture....no b cells so RTX worked...Low IGg subsets so very immunocompromised..must be cautious with any cold or flu..so I wear a mask.....hold on 20mg of prednisone and decrease to 15 mg on the 27 then in 2 weeks down to 10 mg......they want me on 10mg by the time i go back in May...My last CRP is now 2.o...so we will see.....I hope I finally get answers...Have a great day you all
Want to see a miracle? Plant a word of love heartdeep in a person's life. Nuture it with a smile and a prayer and watch what happens...Never underestimate the power of the seed!
My mojo for today.....gonna be johnny apple seed and just keep planting
Lisa Marie
The happiness of people is not necessarily to have the best of everything...but make the most of what you have!!
Registered User
Sounds like you are getting good help nowI hope you have a great day as well.
~ Bob
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Woot woot. The Masked WG Bandit returns. Good to hear they're on it. Are you a little freaked about the quick pred drop - from 15 to 10 in two weeks.... that's a little freaky... but what do I know (not much actually) Hope all goes as smooth as butta for you (the kind of butter that's been out on the counter not the one in the fridge).
The New Autoimmune Project - Find the Common Thread
http://weggiesunite.blogspot.com/ My babbly blog
http://www.zazzle.com/weggiesunite Store with WG Goodies
Phil Berggren, dx 2003
I keep my butta on da counta too. And Marta you might know more if you move to Saskatchewan or at least visit so some of my knowledge rubs off.
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yes i am terrified to drop my pred so wish me luck...and how funny i just bought my son a shirt that.says smooth like butta...and i love me some butta.....got the stomach flu that is going around..day 2 hopefully the aleins in my tummy will leave soon
Want to see a miracle? Plant a word of love heartdeep in a person's life. Nuture it with a smile and a prayer and watch what happens...Never underestimate the power of the seed!
My mojo for today.....gonna be johnny apple seed and just keep planting
Lisa Marie
The happiness of people is not necessarily to have the best of everything...but make the most of what you have!!
Registered User
Registered User
Ok saw the pulmonary doc yesterday here...she read my sleep study and even though i have mild apnea...it is mainly in REM sleep ...so since my pft from mayo does not show asthma and the bronchoscopy shows signs of WG....she feels i may benefit from CPAP..as it may keep the tissue from rubbing....and the WG specialist wants me to start an arthritis med now ....but i will call mayo on Monday and see what they say...don t want to mess up my appointments up there in May
Want to see a miracle? Plant a word of love heartdeep in a person's life. Nuture it with a smile and a prayer and watch what happens...Never underestimate the power of the seed!
My mojo for today.....gonna be johnny apple seed and just keep planting
Lisa Marie
The happiness of people is not necessarily to have the best of everything...but make the most of what you have!!
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