Results 1 to 7 of 7

Thread: Is The Immunosuppressant Medication You Are Taking Preventing Further Hearing Loss?

  1. 03-14-2011, 07:43 PM #1
    beeinformed
    beeinformed is offline Registered User
    Join Date
    Feb 2010
    Posts
    38

    Default Is The Immunosuppressant Medication You Are Taking Preventing Further Hearing Loss?

    Hi Everyone!

    Has the immunosuppressant medication your taking, prevented further sensorineural hearing loss?

    I find this to be a very bothersome symptom and would appreciate it if you could tell me what medication you are currently taking. Thanks.
    Reply With Quote Reply With Quote
  2. 03-15-2011, 12:06 AM #2
    Jack's Avatar
    Jack
    Jack is offline Registered User
    Join Date
    Sep 2008
    Location
    Birmingham, England
    Posts
    2,801

    Default

    I take Myfortic, Pred 10mg and Bactrim plus a lot of other stuff and my hearing problems started about 10 years ago. I have problems due to blocked Eustation tubes and a bad case of Tinnitus which are slowly becoming worse. I can improve things by increasing my Pred intake, but this is not a realistic option. I have not suffered from any major Wegener's symptoms for over 20 years, but there are still underlying signs like this one.
    Jack
    Reply With Quote Reply With Quote
  3. 03-15-2011, 01:36 AM #3
    Sangye's Avatar
    Sangye
    Sangye is offline Registered User
    Join Date
    Nov 2008
    Location
    Maryland, USA
    Posts
    10,128

    Default

    This is a great question for someone seeing an ENT who specializes in Wegs. If anyone is going, please ask them!
    My blog http://sweetnotalways.blogspot.com/

    Reply With Quote Reply With Quote
  4. 03-15-2011, 03:16 AM #4
    pberggren1's Avatar
    pberggren1
    pberggren1 is offline Phil Berggren, dx 2003
    Join Date
    Mar 2009
    Location
    Swift Current, Saskatchewan, Canada
    Posts
    3,963

    Default

    I do know that Methotrexate is ototoxic. I think it depends on the type of hearing loss. With Wegs you can have all 3 types. But I would believe that if one was flaring and the Wegs was attacking the auditory nerve then it would make sense that the immunosuppressant would slow down and stop any further damage to the nerve. My ENT is not a Wegs specialist but I will ask him anyway and I will ask my Wegs doc as well.
    Reply With Quote Reply With Quote
  5. 03-15-2011, 08:59 AM #5
    ArlaMo's Avatar
    ArlaMo
    ArlaMo is offline Registered User
    Join Date
    May 2010
    Location
    Walla Walla, WA
    Posts
    159

    Default

    I had almost complete hearing loss last spring before I was diagnosed. Once I got on the prednisone and cytoxan, most of my hearing came back. I do have some permanent nerve damage and tinnitus, but I don't think my hearing has worsened again while on meds.
    Reply With Quote Reply With Quote
  6. 03-15-2011, 09:18 AM #6
    RCOSSIO's Avatar
    RCOSSIO
    RCOSSIO is offline Richard
    Join Date
    Jun 2008
    Location
    Miami FL
    Posts
    385

    Default

    Oh Gosh...my left ear feels like it needs a plunger...(Did I spell that right). Anyway, my left ear has diminished hearing loss of 25%...i tested for it. But since I look better on my right side it has not been a problem.
    Reply With Quote Reply With Quote
  7. 03-16-2011, 10:31 AM #7
    pberggren1's Avatar
    pberggren1
    pberggren1 is offline Phil Berggren, dx 2003
    Join Date
    Mar 2009
    Location
    Swift Current, Saskatchewan, Canada
    Posts
    3,963

    Default

    I saw my Wegs doc today and asked him about this.

    He said that if the Wegs is causing the hearing loss then the immunosupressant will slow down and stop the hearing loss especially if it is neural (nerve damage from granulomas).
    Reply With Quote Reply With Quote
« Previous Thread | Next Thread »

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •  

Forum Rules